<HR ALIGN=\"left\" ALT=\"Horizontal rule dividing sections\"> <A NAME=\"KSCPASS\"></A> <P ALIGN=\"RIGHT\"><EM>Community-Integrated Personal Assistance Services and Supports</EM></P> <H2 ALIGN=\"CENTER\">KANSAS</H2> <H3>Identified Problems with Kansas' Long-Term Care System</H3> <P> <UL> <LI>Reliance on institutional care for individuals with disabilities and long-term illness.</LI> <LI>Lack of involvement by individuals with disabilities or long-term illness in the development of LTC policy and regulation, and service system design.</LI> <LI>Lack of choice and control over long-term care (LTC) services and supports.</LI> <LI>Lack of individual-needs-based systems of support that build upon existing natural supports.</LI> <LI>Insufficient supply of personal care attendants.</LI> <LI>System for persons with developmental disabilities is based on a dependence model rather than an independence model.</LI> <LI>Fewer options for persons with developmental disabilities to self direct personal attendant services.</LI> <LI>Lack of information on how to manage, train, and supervise personal attendant services.</LI> </UL> </P> <H3>Perceived Strengths</H3> <P> <UL> <LI>Increased funding for community services.</LI> <LI>The state received a grant from the Robert Wood Johnson Self-Determination Project, which was used to identify strategies for increasing self-determination of individuals with developmental disabilities.</LI> <LI>Good consumer control model for some populations, including persons with physical disabilities and persons served by the frail-elderly waiver.</LI> </UL> </P> <H3>Primary Focus of Grant Activities</H3> <P> <UL> <LI>Increase the availability of personal attendants to meet consumer needs in all environments.</LI> <LI>Help consumers achieve greater control of services through revision of policies, provision of information, and training.</LI> <LI>Develop an infrastructure for consumer satisfaction, quality assurance and improvement.</LI> </UL> </P> <H3>Goals, Objectives, and Activities</H3> <P><STRONG>Overall Goal.</STRONG> Develop an infrastructure to increase the use of consumer-directed options for Personal Care Assistant (PCA) services in all regions of the state</P> <P><STRONG>Goal.</STRONG> Increase the availability of personal care workers to meet consumers needs at home, at work, and anywhere else that those needs occur.</P> <P><STRONG><EM>Objectives/Activities</EM></STRONG> <UL> <LI>Increase the availability of quality personal care attendants by using methods such as, but not limited to: creating a job satisfaction survey, reviewing reimbursement, reviewing reading and writing requirements of the job, and determining if backgrounds checks are recommended.</LI> <LI>Change state policies and regulations that require individuals to live with their parents in order to self direct their services.</LI> <LI>Review and amend any state policies that limit the choices of persons with developmental disabilities.</LI> <LI>Collaborate with Medicaid Buy-in (Working Healthy) to develop personal attendant supports for persons with developmental disabilities in work settings.</LI> </UL> </P> <P><STRONG>Goal.</STRONG> Provide an infrastructure to support individuals with developmental disabilities and/or their families in developing and exercising management skills to develop maximum consumer control over all aspects of personal assistant services.</P> <P><STRONG><EM>Objectives/Activities</EM></STRONG> <UL> <LI>Provide information to consumers that will allow them to make informed choices and personally manage their attendant care services.</LI> <LI>Conduct a pilot program with service providers to increase self-directed plans of care for persons with developmental disabilities. Selected pilots are required to support a minimum of eight persons and project staff will provide technical assistance to ensure that this goal is met.</LI> <LI>Develop a model legislative/policy plan to address identified barriers to consumer-directed access and service use.</LI> </UL> </P> <P><STRONG>Goal.</STRONG> Develop a method for collecting consumer satisfaction data from persons with developmental disabilities and their families regarding their services. This data will be used to make program improvements.</P> <P><STRONG><EM>Objectives/Activities</EM></STRONG> <UL> <LI>Modify the statewide reporting system to determine both the frequency and range of self-directed services received by persons with developmental disabilities.</LI> <LI>Modify the current state quality assurance model to ensure that consumer satisfaction data is a primary component of the measurement of quality. Consumer satisfaction variables will include choice of providers; training of personal attendants; hiring, scheduling, and managing personal attendants, determining rate of pay, etc.</LI> <LI>Strategies and methods used in modifying this infrastructure will be shared with state, regional, and national parties.</LI> <LI>Conduct a third party review of a random sample of plans of care that represent a range of self directed services to provide an external validation of the data.</LI> </UL> </P> <H3>Key Activities and Products</H3> <P> <UL> <LI>Share consistent information across all regions of the state so that persons with developmental disabilities can make informed choices and personally manage their attendant care services.</LI> <LI>Work with three pilot developmental disabilities organizations (one urban, one rural, one low unemployment region) to increase self-directed services, identify barriers, and model changes identified by pilot group.</LI> <LI>Identify barriers and develop a plan to address barriers to increase self-directed services.</LI> <LI>Develop a plan to increase labor pool, job satisfaction, and retention among PCAs.</LI> <LI>Develop and disseminate training materials that assist consumers in advertising for, interviewing, selecting, resolving conflict with, and supervising PCAs.</LI> <LI>Analyze the range of services being utilized in self-directed services.</LI> <LI>Collect and evaluate data regarding consumer satisfaction and safety.</LI> </UL> </P> <H3>Consumer Partners</H3> <P>The Self-Directed Attendant Services Advisory Board provides insight and guidance to this project and comprises 51 percent consumers who are persons with developmental disabilities. The remaining 49 percent includes family members, advocates from the Self-Advocates of Kansas, Statewide Independent Living Council of Kansas, Families Together, Kansas Association of Centers for Independent Living, Interhab, and state agency representatives from Kansas Department of Health and Environment and Social and Rehabilitation Services. The function of the Advisory Board is to advise the management team on all activities of the project.</P> <H3>Consumer Partners and Consumer Involvement in Planning Activities</H3> <P>The Kansas Disability/Health Works Force (composed of over 250 consumers and advocates) was convened in January 2000 to work on the Real Choice grants. When the focus of this grant shifted to persons with developmental disabilities, the Self-Directed Attendant Services Advisory Board was developed, the majority of whose members are persons with developmental disabilities.</P> <H3>Consumer Partners and Consumer Involvement in Implementation Activities</H3> <P> <UL> <LI>Consumers will make up at least 51 percent representation on the Self-Directed Attendant Care Advisory Board. Each pilot program will recommend one consumer who will become a member of the Advisory Board. The K-PASS management team will report all activities of the project to the Advisory Board and the pilot groups will provide quarterly updates on their strategies and findings to the Advisory Board.</LI> <LI>Consumers are actively involved in collecting the satisfaction data.</LI> <LI>Involvement of consumers at a local level was a key factor in determining selection of participating organizations in the pilot programs.</LI> </UL> </P> <H3>Public Partners</H3> <P> <UL> <LI>Social and Rehabilitation Services.</LI> <LI>Division of Health Care Policy.</LI> <LI>Kansas Healthy and Ready to Work Project (Medicaid Buy-in).</LI> <LI>Kansas Department of Health and Environment.</LI> </UL> </P> <H3>Private Partners and Subcontractors</H3> <P> <UL> <LI>Occupational Center of Central Kansas.</LI> <LI>Topeka ARC.</LI> <LI>CIL Southwest Kansas.</LI> <LI>Self Advocates Coalition of Kansas (SACK).</LI> <LI>Statewide Independent Living Council of Kansas.</LI> <LI>Interhab.</LI> <LI>The Kansas Association of Independent Living is a subcontractor for the project.</LI> </UL> </P> <H3>Public and Private Partnership Development/Involvement in Planning Phase</H3> <P>Agency representatives and services providers have been involved in program analysis and planning for the grant application.</P> <P><STRONG>Public</STRONG></P> <P>State agency representatives from Kansas Department of Health and Environment and the Adult Medical Policy Division of Social and Rehabilitation Services were involved in the planning process.</P> <P><STRONG>Private Partners</STRONG></P> <P>Representatives from the Statewide Independent Living Council of Kansas, Kansas Association of Centers for Independent Living, and Interhab assisted in the planning of the project.</P> <H3>Public and Private Partnership Development/Involvement in Implementation</H3> <P><STRONG>Public</STRONG></P> <P>Representatives from state agencies such as Social and Rehabilitation Services, Division of Kansas Health Care Policy, and Kansas Department of Health and Environment are serving on the Self-Directed Attendant Services Advisory Board. Agency representatives will continue to provide input regarding implementation, monitoring, and evaluation activities.</P> <P><STRONG>Private Partners</STRONG> <UL> <LI>The Occupational Center of Central Kansas, Topeka ARC, and CIL Southwest Kansas were awarded pilot programs.</LI> <LI>Service providers will continue to provide input regarding implementation, monitoring, and evaluation activities.</LI> </UL> </P> <P><STRONG>Existing Partnerships That Will Be Utilized to Leverage or Support Project Activities</STRONG></P> <P>Representatives from the Home and Community Based Services Division of Adult Medical Policy in Social and Rehabilitation Services are collaborating on review of project activities as members of the Self-Directed Attendant Services Advisory Board. These individuals develop and modify state regulations for self-directed services which increases the likelihood of project findings influencing the existing state infrastructure.</P> <H3>Oversight/Advisory Committee</H3> <P> <UL> <LI>The Self-Directed Attendant Services Advisory Board will meet quarterly to provide guidance to the project. The K-PASS management team and the pilot groups will provide a review of progress on project activities and solicit direction on future planning.</LI> <LI>The project will report back to the Kansas Disability/Health Works Force if and when they reconvene.</LI> </UL> </P> <H3>Formative Learning and Evaluation Activities</H3> <P> <UL> <LI>Baseline and annual feedback will be obtained from consumers regarding their satisfaction with personal care attendant services provided in the pilot programs and in control groups.</LI> <LI>Agency representatives will provide input on progress of the grant goals through participation on the Self-Directed Attendant Services Advisory Board and by direct communication with Kansas Health Care Policy staff and project staff.</LI> <LI>Input from all sources will be reviewed monthly by project staff and will be shared with the Self-Directed Attendant Services Advisory Board, the Real Choice Advisory Committee, and Social and Rehabilitation Services. The input will allow these groups to determine if progress is being made on the project goals and assist the state in determining if changes should be made to their policies and procedures.</LI> </UL> </P> <H3>Evidence of Enduring Change/Sustainability</H3> <P> <UL> <LI>Efforts to implement the goals may result in changing laws,policies, regulations, and practices (e.g., offering a full continuum of options for self-directed services).</LI> <LI>Easy to use promotional materials will continue to be useful in recruiting attendants.</LI> <LI>Identification of consumer satisfaction data as a primary variable in evaluating the self-directed PAS system will assure quality as demonstrated by the Arkansas Cash and Counseling program.</LI> </UL> </P> <H3>Geographic Focus</H3> <P>Statewide.</P>