Intellectual and Developmental Disabilities and Dementia: Experiences of a Family Advocate and Promising Practices

This webinar will provide participants with information on personal experiences, advocacy efforts, and helpful practices for people with intellectual and developmental disabilities (ID/D) and dementia. Mary Hogan will speak about her personal experience as guardian for her late brother and an advocate for her brother and others with intellectual and developmental disabilities and dementia. Phil McCallion will speak about promising practices of how to work with people with ID/D and dementia.

Phil McCallion, Ph.D., Distinguished Professor and Director, Center for Excellence in Aging and Community Wellness at University at Albany. He is the co-principal investigator to the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging and a member of the National Task Group on Intellectual Disabilities and Dementia Practices. Professor McCallion is a national consultant on dementia care for people with intellectual disabilities. His work also includes widespread dissemination of evidence based interventions.

Mary Hogan, MAT and Family Advocate. From 1990-2010 Mary acted as advocate and guardian for her late brother Bill. After his diagnosis of Alzheimer’s disease in 2005, efforts to advocate increased significantly with an emphasis on aging in place and quality of life. Since Bill’s premature death in 2010 at age 49, she has worked to facilitate the availability of information for individuals and families facing the dual diagnosis of Down syndrome and Alzheimer’s disease.