Developmental/Intellectual Disabilities

Mathematica created these compendia of abstracts, summaries, and references in an effort to provide to the public current and easily accessible research on the methodological issues of surveying persons with disabilities. Sources include online journals and websites, conference materials, citations from articles and books, and working papers and dissertations. Version 1, released June 2006, lists 150 resources. Version 2, released October 2008, adds 75.

Through advocacy and support services, the Arc of Spokane promotes independence, choice, and improved quality of life for people with developmental disabilities and their families in Eastern Washington. This edition of their newsletter discusses state and county advocacy and politics, words from staff, tax advice, upcoming events, and program information. Check their website regularly for additional issues and news.

The Service Access for Elders in Public Housing project address issues that affect the quality of life of elderly residents of an urban public housing complex. A survey of the elderly residents was conducted under this project, seeking to better coordinate information and services provided by public and private agencies that serve the residents to assist them to better age in place in their apartments. This report outlines those results.

An interactive map displays how many 1915(c) waivers each state has. Clicking on a state’s name displays number of participant and expenditures by waiver type as compared to nationwide numbers. Participant and expenditure data are also available for personal care, home health, and individualized budget services. Clicking “Compare” in any data area displays a table illustrating selected data for all states. Information is taken from CMS form 372 and is downloadable.

This issue of the "Policy Research Brief" series summarizes the results of a national study on the status, implementation, and degree of consumer control across states. Strategies, challenges, and best practices of consumer-directed services and supports are explored. Information was gathered through interviews with administrators of developmental disabilities services in 42 states.

The purpose of this study was to provide the New Mexico Human Services Department with information about variations (if any) in provider payment rates for home and community-based services within the state and across states.

This study examines community-based long-term care services in Rhode Island. It reviewed service rates and rate methodologies for four specific community-based services; assessed workforce capacity needed to provide services in the future; and made recommendations regarding the potential to restructure the State’s funding across different programs to support assisted living, home care, respite care, and adult day care.

This feasibility study was undertaken to assess respite services for children with disabilities in Maryland. The study compiled and analyzed an annotated list of the Code of Maryland Regulations pertaining to respite, conducted two surveys of agencies that provide respite services to families of children with disabilities, and of the families themselves, and developed a demonstration model that would provide a respite service operated in the manner of a Medicaid service.

This report presents the Medicaid Commission's recommendations for the long-term sustainability of the Medicaid program. Review the recommendations about Long-Term Care, Benefits Design, Eligibility, Health Information Technology, Quality and Care Coordination. The Commission strongly recommends increased state flexibility in many areas to tackle more locally influenced issues.

The Maryland General Assembly passed the Long-Term Care Planning Act of 2006, which requires the Maryland Health Care Commission to conduct a study of Maryland’s long-term care delivery system. The purpose of the study is to determine the types of services and programs that individuals aged 65 and older and individuals with disabilities will need in 2010, 2020, and 2030, as well to identify how the State should begin planning for future needs. This report presents the results of the study.