Developmental/Intellectual Disabilities

March 2-4, 2009 state program staff, CMS staff, and technical assistance providers met in Baltimore to discuss Money Follows the Person and other strategies for helping people move out of nursing homes. Speakers presented on topics ranging from service integration, housing finance strategies, mentoring, quality, and many others.

Program administrators, advocates, and researchers advise the Senate on ways to improve wellbeing and cost outcomes of long-term care by increasing access to HCBS. They speak on national demographics, successful HCBS programs of the past and present, state programs in Wisconsin and Florida, integrating acute and long-term care for dual eligibles, and program finance models. See “Video Contents Index” for time stamps and information on each testimony.

This document outlines a Forum Session which was sponsored by the National Health Policy Forum at George Washington University. The Forum topic focused on different state's approaches to managing overall long-term care spending, offering consumers broader access to home and community-based services, and coordinating long-term care services.

Long-term care services for the elderly and for younger populations with disabilities are a significant component of national health care spending. In 2006, long-term care spending was almost $174 billion, most of it paid by the federal-state Medicaid program. This report focuses on concerns about the financing, the already substantial public role, which presages rapid spending increases as the “baby boom” population ages may lead policymakers to revisit these issues.

View the forum session presentations to learn how Arkansas, Texas, and Virginia have created consumer-directed options. They discuss demographics, program details and histories, costs, challenges, and the future. The final presentation goes over Money Follows the Person and Cash and Counseling from the federal level, examining policy, demographics, and outcomes.

Since 1963, the Developmental Disabilities Assistance and Bill of Rights Act has steered federal funds to support research, advocacy, best practices, and demonstration projects. It set the ground for other groundbreaking legislation. Here you will find the text of the 2000 renewal of the Act and a free online repository housing a legislative history and older analyses and relevant technical assistance documents.

The experience of the Cobb and Douglas Counties Community Services Boards in Georgia in shifting from a segregated traditional service system to an innovative system focusing on economic development for persons with disabilities illustrates some common aspects of system change. The 7-year organizational evolution is analyzed here. The main points that emerged are: staff development; partnerships and funding; sustainability; management and HR practices; and expanding coverage to new populations.

This cross-disability synthesis white paper presents an overview of direct service workforce (DSW) challenges and practices across sectors and provides a call to action regarding these issues. Little has been written about how DSW jobs vary by population served. Beyond demographics and challenges, the authors also examine the development of different service models, promising practices and areas for planning and action. The appendix catalogs core competencies for each group.

Models, innovations, and best practices in case management and support coordination for persons with disabilities are described here. Policy issues, the CMS Quality Framework, and types of case management and differences in service by waiver group are given. The brief also links to innovative programs in 7 states and England.

This resource guide gives consumers information about quality in long term care services, outcomes expected from services, and information about how the state of Vermont assures and improves its services. It also discusses the how consumers can receive more information or assistance and their role in assuring and improving quality of services. Other states can use this as a template when designing their own quality programs.