Surveys

This report serves as a follow-up to the 1995 Institute on Medicine (IOM) report which argued for an ombudsman program to address the quality of care in long-term institutional settings. This study investigates the role and effectiveness of the State Long-Term Care Ombudsman Programs (LTCOPs) in improving care. Surveys with all states/territories reveal new findings on the structure of the program in different states as well as their own perceived effectiveness. Comprehensive data and analysis.

The Older Americans Act of 1965 created the National Aging Network with many states adopting Area Agencies on Aging at the local level. This brief is a summary of two surveys regarding states’ monitoring practices of their Area Agencies on Aging (AAAs) and states’ spending rules for their AAAs. All states with Area Agencies on Aging which were surveyed reported that they conduct some monitoring, and most differed in their rules concerning excess funds.

The survey focused only on the Personal Assistant Workforce employed through the Center’s for Independent Living (CIL) Fiscal Intermediary (FI) programs at Disability Action Center Northwest (DACNW), Living Independence Network Corporation (LINC), and Living Independently For Everyone (LIFE). The major focus of this survey was to gather ideas and responses from personal assistants on ways to improve the retention rate in the FI In-home Personal Assistant (PAS) Workforce.

The goals of the survey, which was sent to direct-care workers serving participants using the MI Choice SD option, were to: collect baseline demographic information on workers in the SD option; understand the motivations, job satisfaction, and training needs of workers providing services and supports to self-directed participants; and,identify strategies to strengthen and support the recruitment and retention of workers in self-directed programs.

Review the data products and publications from a new survey about Residential Care Facilities. Included are residential care facilities; assisted living residences; board & care homes; congregate care; enriched housing programs; homes for the aged; personal care homes; & shared housing establishments that are licensed, registered, listed, certified, or otherwise regulated by a state. NSRCF is designed to produce national estimates of facilities and their residents.

This survey aimed to increase the understanding of the extent to which ADRCs have worked to ensure their services are LGBT-friendly, engaged in special LGBT outreach activities, and worked to identify community organizations and service providers in their resource databases that are LGBT-friendly. Thirty organizations from at least 15 different states responded. From the responses it can be seen that ADRCs are still at the beginnings of specifically serving LGBT individuals.

The Affordable Care Act requires the Office of Inspector General to submit a report to Congress evaluating the law’s Nationwide Program for National & State Background Checks on Direct Patient Access Employees of Long Term-Care (LTC) Facilities within six months of the program’s completion. OIG recently conducted a survey of LTC provider administrators, & asked them about current practices regarding background checks on potential employees, & the effects of such programs on the LTC workforce.

Despite continued fiscal pressures on states, eligibility policies remained stable in nearly all state Medicaid and Children's Health Insurance Programs during 2011. Moreover, many states used technology to increase program efficiency and streamline enrollment. The "maintenance of eligibility" requirement in the Affordable Care Act (ACA) played a key role in preserving coverage levels. Without it, more states likely would have limited eligibility or tightened enrollment procedures.

State aging & disability agencies are operating in an era of state agency reorganization, re-conceptualization of state government, & restructuring of long-term services & supports delivery systems & financing. Key elements driving continued change include the economic environment, ACA implementation, uncertainty in the federal budget particularly with the failure of the Congressional Super Committee, changes in state level leadership, & the 2012 elections.

Existing national disability-related survey & administrative data are limited in their ability to meet needs of federal programs & policy makers. One potential response to these shortcomings is the fielding of a national disability survey. This report was prepared to assess the need for developing & fielding another national disability survey data collection effort. It presents findings from one of the project’s major activities designed to review the disability-related information.