Surveys

Are you a person with a disability interested in the accessibility of medical clinics? The Rehabilitation Research and Training Center (RRTC) on Health & Wellness is asking people with disabilities to participate in an on-line survey identifying barriers to routine health care. Information gathered will be used to develop a checklist which health care providers can use to assess their accessibility. The survey takes no longer than 15 minutes to complete and must be answered by September 30.

As part of the State of Wisconsin’s Quality Close to Home (QCTH) project, a contract was established with the University of Wisconsin – Madison’s Center for Health Systems Research and Analysis (CHSRA). This report describes the uses, methods, advantages, and disadvantages of four distinct sets of quality indicators, also called personal outcomes and performance outcomes. It also provides a overview, structural review and observations of the quality indicators.

HUD Secretary Alphonso Jackson released two papers titled Discrimination Against Persons with Disabilities. <i>Barriers at Every Step</i> coupled with its companion report, <i>Guidance for Practitioners</i>, advance the consumer’s ability to verify – and furthers chances of eradicating – inequity in housing opportunities for persons with disabilities. This newly released study employs a number of newly developed, field-tested tools for measuring housing discrimination.

From the spring of 2004 through January 2005, a series of surveys was administered to long term care workers (DCWs) and their employers in the tri-county area of Clinton, Eaton and Ingham counties of Michigan. The survey was designed to establish a baseline profile of the area workforce and identify potential areas for advocacy on behalf of the workforce, especially in the areas of recruitment, training and retention. This report contains survey questions and results.

In 2001, CMS worked with state agency associations to initiate the National Quality Inventory Project (NQIP) with a goal to obtain baseline information about state HCBS waiver program QA/I systems. Through this project an extensive survey of state QA/I systems was conducted. This report describes NQIP, summarizes and discusses the results of this first-time, nationwide systematic survey of state waiver program QA/I systems. The report also includes recommendations for CMS follow-up.

The target population for this instrument is adults with acquired brain injuries. It was developed with assistance from brain injury waiver staff in several states and combining elements of the original PES E/D & MRDD tools. The four domains include: program supports; choice and control; respect and dignity; and community activities. Two additional sets of questions, covering community integration in greater depth and ADL/IADL unmet needs, are included for waiver programs where applicable.

The Delaware Passport to Independence goals are to: identify residents of nursing homes who may want to move to a new home; interview and assess residents for possible community living; explore if it’s feasible for some residents to transition; create an Individualized Service Plan for those choosing to be considered. They have created a number of tools during the project development including an education outreach presentation, assessment form and survey tool.

A survey in West Virginia was conducted in February-March of 2005 regarding: 1. Hospice programs that serve adults with developmental disabilities (DD) 2. training and educational materials for hospice staff on caring for people with DD 3. information about hospice end-of-life care developed for service provider staff and families. The national information gathering activity was initiated by the Association of University Centers on Developmental Disabilities. This report reviews the results.

The ADRC Pilot Site in Broward County Flordia shared a plan used to measure the agency's goals, strategies, and progress towards provision of culturally competent services. The plan offers guiding principles: responsibilities, implementation period:and outcomes for each of the strategies.

The South Carolina ADRC also known as South Carolina Access Plus has developed a number of tools for assessment. The evaluation team uses this protocol to interview ADRC staff members and partners for the first time and then later after an initial baseline interview has been performed.