Reports

This is the fifth national survey of the direct-care workforce published by the National Clearinghouse on the Direct Care Workforce. It examines public policy actions taken by states to strengthen the direct-care workforce, and updates information collected in prior surveys. Responses were received from 38 states, representing a 76 percent return rate. The report contains data tables with survey results and details national initiatives pertaining to the direct care workforce.

This report analyzes survey data to describe the characteristics of two groups of nursing home residents who are 65 years or older: those discharged back to the community over a one year time period and those who remain in nursing homes longer than 90 days. As some states turn their attention to returning nursing home residents to the community, this report offers insights on who to target in transition programs and what level and types of community resources are needed.

In the aftermath of Hurricane Katrina, the unique needs of people with disabilities must be surveyed and responded to. If you’re seeking help, review our collection of resources, initiatives and written material about available assistance and supports.

This Issue Brief summarizes the results of a recent descriptive study, Medicaid and Family Caregiving: Services, Supports and Strategies Among Aged/Disabled HCBS Waiver Programs in the U.S. (Feinberg & Newman, 2005). This issue brief is the first to characterize and analyze the role of Medicaid HCBS waiver programs in supporting family and informal caregivers of frail elders and adults with disabilities. The brief highlights key findings and summarizes conclusions.

This AARP Public Policy Institute fact sheet and report outlines the need for publicly funded respite services for family caregivers and describes the types available. The research concludes that publicly funded caregiver support programs play an important role in sustaining and strengthening the unpaid, informal care provided by families.

The National Council on Disability (NCD) released this report on April 15, 2005. This report provides an overview of steps the Federal Government should take to build a solid and resilient infrastructure that will enable the government to include the diverse populations of people with disabilities in emergency preparedness, disaster relief, and homeland security programs.

The majority of public funding in the US for home and community-based care comes from Medicaid. Yet we know relatively little about how and in what ways Medicaid HCBS waiver programs support family caregivers or how such waiver services coordinate with other federal or state-funded caregiver programs. This descriptive study is the first to characterize and analyze the role of Medicaid HCBS waiver programs in supporting family and informal caregivers of frail elders and adults with disabilities.

Although consumer direction is a growing trend in publicly supported HCBS programs across the states, we know relatively little about how this approach is implemented in the states. This national study aims to describe the role of consumer direction in publicly funded family caregiver support services and HCBS programs with a family caregiving component. This report addresses three questions with the intent of informing policy discussions.

State policy makers and consumer advocates are advancing programs and policies to support community living for all individuals. Operationalizing principles of “self direction,” “consumer direction,” or “participant direction” entails many details. This State Policy in Practice technical assistance document offers concrete information and specific state examples on ways to implement participant-directed planning and individualized budgeting.

Rutgers Center for State Health Policy/National Academy for State Health Policy Community Living Exchange Collaborative organized a site visit for Money Follows the Person grantees to learn about the Pennsylvania Community Choice Initiative. The initiative was designed to expedite access to home and community based services to avoid admission to a nursing home. The site visit was attended by grantees from California, Idaho, Michigan, Nevada, New Jersey and Texas.