Data

This study provides a detailed profile of Hispanic family caregivers to determine how they differ from non-Hispanic caregivers and to explore their information and service needs. Key findings regarding incidence of family caregiving situations, demographics, care intensity, reported stress levels, and cultural beliefs, and others are presented. The authors also discuss policy implications of the findings.

About 52 million people provided family caregiving worth about $375 billion in 2007. That amount exceeds Medicaid long-term care spending in each state. Caregiving services included in the estimate are personal care, help with everyday tasks, and health-related interventions. The document presents data nationally and by state and concludes with policy recommendations to support and sustain family caregivers.

Everything from program structure, eligibility, services, financing and expenditures are covered here in concise summaries. This updated edition also contains graphics showing expenditures by service and the growth of Medicaid acute care spending as compared to private health plans. The tables at the end present data broken down by state. Refer to the 2007 version for historic perspective.

Older Americans speak up on the importance of services and policies that enable them to age in place through the use of home and community-based services (HCBS). Results show that respondents are not only concerned with HCBS as they remain in the home, but also as they move to nursing home alternatives such as assisted living facilities. They identify the availability of long-term care options as one that should be a top priority for AARP's advocacy.

This summary of demographic and economic statistics from 2007 on the non-institutionalized population with disabilities is meant for policy makers, advocates, reporters, and the public. Data include information on the population size and disability prevalence for various demographic subpopulations, as well as statistics related to employment, earnings, and household income. Comparisons are made to people without disabilities and across disability types.

Since 2002, MetLife Mature Market Institute has gathered data on the costs of long-term care in institutional and community-based settings. This 2008 report looks at home care and adult day services. Costs are broken down by state, metropolitan statistical area (MSA), and “rest of state,” or areas not in a MSA. Home care costs are measured in hourly private pay rates, and adult day costs are measured in daily private pay rates.

Is your area a livable community? You can use this survey and accompanying reports as a model for finding out. AARP defines a livable community as one that allows people to maintain their independence and quality of life as they age and retire. Aspects that make a community livable include mobility, community supports, and affordable housing. Residents age 45 years and older in two OH counties were surveyed to measure whether these things are truly available in their communities.

In the U.S., workers that experience disability onset are unlikely to receive return-to-work supports unless their disability is work-related or they have private disability coverage. The Pathways to Work program in the UK offers a range of supports that focus on preventing loss of work. After 18 months of evaluation, the data shows that it substantially improves outcomes. This brief offers lessons for U.S. policymakers that may pursue this strategy in the future.

This brief, the eighth in a series on working with disability, looks at the employment outcomes of participants in CommonHealth Working (CHW), Massachusetts’s Medicaid Buy-In program. Differences in post-enrollment employment rates, monthly hours worked and earnings, and private health insurance coverage are compared between new CHW enrollees previously covered by MassHealth, Massachusetts’s Medicaid program, and those without prior MassHealth coverage.

Charts and data illustrate health-related differences between disabled and non-disabled noninstitutionalized adults in this report. Data are from the National Health Interview Survey. One section illustrates differences in access to care and health insurance coverage. Numbers on the prevalence of disabilities, demographics, and health behaviors and risks are also given.