Consumer/Participant Direction

These position papers completed by a work group result from the Real Choice Consumer Work Group's determination to improve the lives of people with disabilities in West Virginia and to contribute to their own recommendations and strategies on major issues. This compilation of papers address: Waiting Lists; Strengthening Personal Assistance Programs in West Virginia; and Expanding the Horizons of Employement Options for West Virginians with Disabilities.

This statewide community-based participatory action research study was conducted to identify opportunities and barriers for persons with disabilities in obtaining accessible, affordable housing in West Virginia. Using surveys and a facilitated group technique, persons with disabilities identified existing barriers and developed a set of questions for housing industry professionals. This article was published in \"Housing and Society\" the journal of the Housing Education and Research Association.

This unique and innovative handbook is a guide for educators, providers, support people and/or family members to use as they work closely with youth and adults with significant disabilities, mentoring them as they develop and practice self-advocacy skills that will promote the highest level of independence and success in life activities.

This curriculum to train personal assistants has two elements: a competency or skill development component and a didactic or knowledge development component. The skill development components include Connecting, Coaching, Collaboration, and Managing Crises. The knowledge development component is a web-bases curriculum entitled Personal Assistance Services for Individuals with Serious Psychiatric Disabilities.

This plan describes fundamental changes that states have implemented and found effective in controlling the public costs of long-term care while insuring that people receive quality services of the type, and in the settings, that they choose.

What do people considering enrolling in a self-directed program need to consider? This presentation describes many of the considerations in detail for those living in Louisiana. The New Opportunities Waiver (NOW) is the service delivery option offered by the Office for Citizens with Developmental Disabilities. The slides offer an overview of key components and responsibilities of self-direction.

The National Health Policy Forum Issue Brief provides information about Systems Change grants and the kinds of activities state Medicaid agencies have undertaken to transform their institutionally based systems. This brief raises critical policy questions related to public spending for long-term care in different settings that might be considered in tandem with future grant funding decisions.

AoA announced the availability of $5 million for these grants which provide an opportunity for States to modernize their existing efforts by adding flexible service options to help individuals who are not eligible for Medicaid to avoid nursing home placement and spend down to Medicaid, and to remain in their homes and communities. The applicant teleconference is scheduled for July 11 at 3pm. Submission of letter of intent is for July 20, 2007 and the deadline is August 24, 2007.

This training was designed by Montana RCSC grantees to help individuals with developmental disabilities to acquire information, skills, and tools to support them to exercise increased control over their own lives and create the quality of life they prefer. The training course is intended to be a participant-driven course. The training includes a section for introduction, being empowered, starting to take charge, being on the team, in the driver’s seat, and other issues.

Montana grantees developed the following curriculum designed for advocates which is broken into chapters that total approximately 45 hours of classroom training. Individual chapters and/or activities from this curriculum may be pulled out and adapted/utilized as needed. In certain activities, STEP, Inc. forms have been included as examples. The eleven topics range from the overview of services and eligibility to self-directed employment practices, accessing resources and a toolbox.