Advocates

This report’s results suggest that surrogates can adequately represent consumer's views about satisfaction with personal assistance, and therefore provide encouragement to continue investigation of the utility of surrogate representatives. The study results also replicate previous findings that persons with cognitive impairments and persons with severe disabilities are able to express their preferences for everyday matters.

This webinar on participant advocacy was presented by Bob Michaels and Leau Phillip on September 17, 2007 for the Cash & Counseling National Participant Network. The archived web cast is available here, along with the agenda, presentations, and text transcript.

FCA launched this online community promoting professional knowledge around families in their caregiving role. The site offers resources to help policymakers, professionals and family caregivers develop caregiver-friendly legislation or initiatives, implement caregiver support programs or services, and access information to enhance the delivery of quality care. Interactive site features include an online forum and user submissions.

Developed by an FMS provider, this handout offers guidance to participants on becoming employers, through fiscal intermediary services, as determined in their Person Centered Plan.

The National Technical Assistance and Research Center to Promote Leadership for Increasing the Employment and Economic Independence of Adults with Disabilities has released Collaborating and Coordinating with Employers, a brief that illustrates key research findings, outlines existing strategies and practices that are advancing the concept of disability and business collaboration, and provides resources that further illuminate effective strategies and examples of these collaborations.

Review this sample of an MOU between the Alaskan Division of Vocational Rehabilitation and the Alaskan Division of Behavioral Health. It addresses providing equal access to employment, not just as a fundamental right for those affected by behavioral disabilities, but as an essential step towards better behavioral health. Use this sample MOU as a template if your program were trying to craft a similar document.

ADAPT is a group of self-advocates working for civil rights for people with disabilities. Follow the link to see their arguments and evidence in support the Community Choice Act. The Act would establish a national program of community-based attendant services and supports, regardless of a person’s age or disability, and allow them to choose where they receive services. Materials include talking points, summaries, links to the bills, and updates on status and actions related to the Act.

The authors present evidence in support of states investing in HCBS and nursing home diversion as strategies to deal with declining revenue. They review research reports illustrating how the balance of spending on institutional versus HCBS spending affects future long-term care costs. Using these data and case studies of Washington and Vermont programs, they conclude that HCBS is indeed cost-effective.

When states are unable to serve all those eligible for vocational rehabilitation services, they are obligated to use an “order of selection” and first serve people with the most significant disabilities. The paper informs policymakers, agencies, providers, and consumers about the frameworks used by the federal government and selected states to deal with this issue.

The majority of NH’s long-term care (LTC) expenditures go to nursing homes, despite the fact that only 2% of surveyed AARP members prefer to receive care in that setting. The AARP surveyed 800 randomly-selected members to set their advocacy agenda in the state. Other opinions gauged deal with ability to pay for LTC, personal sources of LTC financing, volunteerism, and voting practices.