An Exploratory Study of Personal Assistance Service Choice and Decision-Making Among Persons with Disabilities and Surrogate Representatives

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Article Publication Date: 
11/1/2001
Summary: 
This report’s results suggest that surrogates can adequately represent consumer's views about satisfaction with personal assistance, and therefore provide encouragement to continue investigation of the utility of surrogate representatives. The study results also replicate previous findings that persons with cognitive impairments and persons with severe disabilities are able to express their preferences for everyday matters.
Article Author: 
Squillace Ph.D., Marie R.; Mahoney, Ph.D., Kevin J.; Shoop, Ph.D., Dawn M.; Simon-Rusinowitz, Ph.D., Lori; Desmond, Ph.D., Sharon M.
Topics: 
Consumer/Participant Direction
Types/Tools: 
Reports; Assessments; Surveys
Populations: 
Developmental/Intellectual Disabilities; Advocates
Sources: 
The Journal of Mental Health and Aging
Programs/Initiatives: 
Cash and Counseling
States: 
All States/Territories; New Jersey
Keywords: 
N/A
preferences for everyday personal care; New Jersey telephone survey; PAS choice and decision-making; the dominant perspective in consumer-direction; consumers with cognitive impairments; legitimate consumers of long-term care;

Contact

Elizabeth Maguire
National Resource Center for Participant-Directed Services
elizabeth.maguire.1@bc.edu
Phone: 
617-552-0562

Short URL: http://www.advancingstates.org/node/52121