Consumer/Participant Direction

On November 9, the Centers for Medicare & Medicaid Services released a No Surprises Act (NSA) toolkit to help assisters and advocates who work with consumers faced with surprise medical bills. The toolkit is divided into the following sections:Introductory language about the NSA and how to use the toolkit; Documents that describe the key protections, how the protections apply to various consumers, and the status of implementation; Decision trees to help assess consumers’ situations regarding the various provisions; Documents to help consumers interact with the No Surprises Help Desk and file a complaint;...

On July 7, The U.S. Department of Health and Human Services (HHS) announced actions to protect consumers from junk health plans, surprise medical bills, and excess costs that lead to medical debt. HHS also released a new report projecting that nearly 19 million older adults and people with disabilities with Medicare will save on average $400 per year on prescription drug costs when the $2,000 out-of-pocket prescription drug spending cap from the Inflation Reduction Act (IRA) goes into effect in 2025...

The National Indian Council on Aging has released a toolkit dedicated to increasing awareness and knowledge of the needs of American Indian and Alaska Native persons living with disabilities. The resource is divided into sections for healthy living, education, independent living, vocational rehabilitation and employment resources, assistive technology, housing and facilities, and transportation. It includes suggestions for improving services, providing protections, and utilizing resources in local tribal communities for people with disabilities. Additional information provides overviews on federal disabilities laws, initiatives, agencies, and organizations that support work with Native individuals with disabilities and communities.

The Rehabilitation Research and Training Center on Home and Community-Based Services has released their first issue brief. The brief explores the medical, social, and biopsychosocial models of disability, their relationship with evolving frameworks of person-centeredness, and implications for providers and others who deliver services and supports.

The AARP Public Policy Institute recently launched a three-year initiative which aims to transform long term care in the United States. LTSS Choices will be a series of reports, blogs, videos, podcasts, and virtual convenings that seek to catalyze reform and spark ideas to modernize LTSS, long term services and supports. The goal is a long-term care system that provides a wide range of choices to meet the dynamic needs and preferences of consumers and their families.

ACL recently released the Annual Report on Centers for Independent Living for program year (PY) 2019. CILs offer support for individuals with disabilities who want to live independently in their communities. The CIL program provides financial assistance to local CILs and other CBOs. This annual report includes data from CIL annual program performance reports, federal program staff oversight and compliance activities and publicly available information on grantee websites between 9/30/18 - 9/29/19

This resource was developed for human service agency leadership whose role is directing the organization and delivery of services and supports. The five competency domains include: Strengths-Based, Culturally Informed, Whole Person-Focused; Cultivating Connections Inside the System and Out; Rights, Choice, and Control; Partnership, Teamwork, Communication, and Facilitation; and Documentation, Implementation, and Monitoring.

This resource aims to help human service agencies in states, tribes, and territories to measure their progress in developing person-centered systems. The Self-Assessment was designed to be used by staff at all levels. The Self-Assessment measures progress in eight different domains: Leadership; Person-Centered Culture; Eligibility & Service Access; Person-Centered Service Planning & Monitoring; Finance; Workforce Capacity and Capabilities; Collaboration & Partnership; and Quality & Innovation

The purpose of this Guide is to assist State, Tribal, and Territory human service systems to fully and effectively including people who receive services in system planning and improvement efforts. It is relevant for all systems that support older adults and people with disabilities. This guide was originally developed as part of technical assistance activities through the National Center on Advancing Person-Centered Practices and Systems (NCAPPS)

The Home and Community Based Services (HCBS) Conference is hosted annually by ADvancing States (formerly known as NASUAD). This event highlights best practices from across the country in home and community-based services. The conference includes federal, state, and local policymakers as well as those who administer, manage, and deliver waiver and other HCBS programs. This link contains all of the slide presentations from the 2019 HCBS Conference.