Surveys

While caregivers of veterans face similar situations as family caregivers in general, they also have unique challenges. The study reveals how providing care affects these caregivers’ lives, what organizations and information sources have been helpful to them, and what programs and services would support and assist them. Attached are links to the Full Report, Executive Summary in English and Spanish, Press Release, and a Key Findings Fact Sheet.

States have faced considerable challenges, but by the end of 2009, MFP programs had helped approximately 5,600 people transition to community living. This report describes the program’s status through December 2009, including how states are progressing toward their goals, and provides baseline information for analyses of impacts and outcomes.

Looking for samples of MIG program evaluations? The state of Connecticut created the attached evaluation reports for their Connect-Ability Program. These samples contain program details and the needs, experiences, and satisfaction of individuals who received services. Also included are the procedures and outcomes of nine strategic plans implemented by Local Level Pilot programs. These reports could be helpful for states interesting in evaluating similar initiatives.

For the tenth consecutive year, a survey of Medicaid officials in all 50 states and DC was conducted to track trends in Medicaid spending, enrollment and policy initiatives. Findings are presented for FYs 2010 and 2011. As states grapple with historically difficult budget conditions, they must also plan for the implementation of the ACA. Review this report including background on the Medicaid program, as well as current issues the program faces.

According to the results of this survey, the most significant factors that drive turnover among home care workers are wages, intrinsic rewards, age (older workers are less likely to leave their jobs), and education level (more years of education result in higher retention). The study involved a sample of 116 home care aides employed by three agencies.

Two studies examine the need for HCBS services and the economic profiles of adults with disabilities in MA. The main study examines the unmet needs of adults age 18-59 with disabilities, and the caregiver study focuses on the perspective of informal caregivers, i.e., their unmet needs and those of the people for whom they provide care. A detailed description of the survey methodology and exact criteria for selection into the study is included, as well as copies of the surveys.

States play among the most critical roles in responding to and ameliorating disability unemployment. Find examples of state policy related to disabilities, a selection of state programs and initiatives, descriptions of select federal policy, and primary source documents. Topics covered include housing, employment, community integration, long-term care, health, disability awareness and benefits counseling.

Medicaid finances nearly half of all LTSS spending. Review an update to existing data on Medicaid financial eligibility standards for nursing home and HCBS waiver services for older persons and adults with disability. 2009 data were obtained on state selection of optional pathways for eligibility, income and asset standards, cost-sharing and other post-eligibility financial requirements. A copy of the survey instrument and accompanying letter to state Medicaid Directors are included.

Disability rates among older Americans have declined, and the ways in which community-dwelling older people with disabilities managed their conditions have substantially changed over the 20 years covered by this survey. Among those receiving human assistance, the vast majority were helped by family caregivers, who are increasingly taking full responsibility for providing care. Find detailed analyses of the data in two research reports that provide insight into the factors driving these changes.

States are curtailing optional services, extending waiting lists, cutting provider reimbursement, and taking other measures to cope with the worst economic downturn in 70 years according to a comprehensive 50 state survey. Even as state revenues shrink, the demand for services is increasing. On a brighter note, many states may participate in expanded HCBS services through ACA opportunities. Review preliminary findings presented at the National HCBS Conference in September, 2010.