Information and Referral

New York’s Family to Family Real Choice Grantee, Parent to Parent has compiled a group of publications to assist families with children with special health care needs in understanding the complex system naviagate. Titles include: Understanding Health Insurance, Prescription Tips From Parents, Financial Aid, Researching Health Care Information on the Internet, Selecting a Doctor, Section 504 Fact Sheet, Understanding Medicaid and Tips For Handling Medical Appointments.

Health literacy can be defined as “the degree to which people can obtain, process, and understand basic health information and services they need to make appropriate health decisions. Awareness that people with low health literacy skills face difficulties accessing and navigating the health care system has prompted greater emphasis on making communications clear and easy-to-read. This issue brief offers recommendations and resources particularly for resource centers.

This report summarizes the results of the Massachusetts qualitative consumer satisfaction surveys with both ADRC consumers and surveys of the Consumer Board and Community Partners Advisory Board. The report contains the survey tool, methodology, findings and recommendations to improve satisfaction among these key stakeholder groups as part of the ADRC project’s continuous quality improvement approach.