Developmental/Intellectual Disabilities

While progress is being made in finding meaningful jobs for individuals with developmental disabilities, an economic downturn makes it difficult to hold the focus on employment goals and maintain momentum within state agencies, services providers, and community employers. State officials offer talking points to guide and assist decision-making to maintain critical components of the service delivery system.

Follow the link for a comprehensive listing of state statutes, regulations, policies, and procedures regarding the use of emergency or planned physical, chemical, mechanical, or other restraints. Additional documents offer information on positive behavior support guidelines, training manuals, and other policy-related materials. Many emphasize the use of positive or non-aversive interventions. Links are provided to access documents on many state DD agency websites.

Young people and their families are in the best position to make choices about working when they have good information about the impact of work on benefits. The Social Security and Medicaid/MassHealth programs have work incentives that can help young people give work a try, and provide a “safety net” in case the job does not work out. The purpose of this booklet is to give families and professionals working with young people some practical, hands-on information about work incentives.

Here is a collection of links and information for those interested in learning about efforts and resources aimed at improving opportunities for youths with intellectual disabilities to go to college. The site is divided into sections for students, family members, and professionals. Features include a searchable database of postsecondary supports, a discussion board and listserv, and a resource list. Download or subscribe to their Newsletter.

The National Council on Disability is required by law to annually submit a report on the status of the nation in achieving policies that guarantee equal opportunity for all individuals with disabilities and empower them to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. The 2009 report focuses on current quality of life indicators and emerging trends that should be factored into future policies and programs.

Quality surveys were developed to be administered by consumers to other consumers and their families. They measure in-home attendant care, habilitation, and respite services delivered. In addition to surveys are materials used to train the interviewers, survey response thresholds, and a presentation outlining survey findings.

To support self-employment, START-UP / USA provides resources to people with disabilities and generates data and information to validate systems change and capacity-building strategies. The site offers case studies, fact sheets, training materials, webcasts and seminars.

Finding and enrolling older adults and adults with disabilities into benefit programs for which they may be eligible represents an enormous challenge to the agencies that serve them. This website provides tools and resources to these local, state and national agencies to assist them in helping their clients access benefit programs, along with information on best practices and cost-effective strategies for outreach and enrollment.

The question posed in the title is answered by analyzing state spending data from 1995-2005. The report shows that, for two distinct populations receiving long-term care services, spending growth was greater for states offering limited noninstitutional services than for states with large, well-established noninstitutional programs. Expansion of HCBS appears to entail a short-term increase in spending, followed by a reduction in institutional spending and long-term cost savings.

Florida created tools to gather information essential to measuring quality from consumers in programs serving people with developmental disabilities and their families. The “Road Map” summarizes the quality assurance process and informs people of their rights. “My Personal Compass” assists in evaluating services received. The last link connects to other resources from the Florida Statewide Quality Assurance Program.