Developmental/Intellectual Disabilities

This spreadsheet provides a list of ADRC program sites and information about which organizations are operating the ADRC and the services and functions they provide. The list is organzied by state and then country.

The Council on Quality and Leadership offers short guides on quality elements such as accountability, service relationships, leadership, record and data keeping, human resources, and many more. Each guide provides a bulleted list of things to keep in mind or actions to complete to ensure that each element is managed well.

As it becomes increasingly clear that a vigorous effort toward reforming the nation’s health care system will be an important part of the policy landscape in the near future, the National Association of State Directors of Developmental Disabilities Services (NASDDDS) seeks to ensure that health care reform efforts fully consider the needs of individuals with developmental disabilities and their families. This brief outlines NASDDDS position on this important issue.

Transitioning from school to work for youth with disabilities can be a complicated process. Sponsored by TransCen and the Johnson Scholarship Foundation, these online modules are designed to provide an overview for these young adults in transition, with a focus on work-based experiences, empowerment, health and social service linkage, family supports and interagency collaboration.

Being part of campus life, taking classes, and learning to navigate a world of high expectations develops the skills needed for successful adult life. This brief presents: definitions of "postsecondary education" and "intellectual disability"; an overview of education options; research findings on education options and outcomes; recommendations for improving access; and a bibliography with a list of websites.

The brief make the case that supportive housing should be the primary housing option available though mental disability service systems. The point is based on data showing that stable, independent housing is what people with mental disabilities want and is a necessary condition for the success of other services, such as case management and addiction treatments. Further, the Americans with Disabilities Act mandates that services be provided in the most integrated setting possible.

This report describes recent progress in moving state developmental disability systems using HCBS 1915 (c) waivers toward greater efficiency and equity, in the context of pressing issues in the field. It is important to note that these initiatives could be equally well applied to other Medicaid waiver populations.

The NQE provides free technical assistance on quality to states operating Medicaid HCBS programs. States can use the site to request technical assistance, pose questions to staff, engage online with other HCBS staff, and learn about upcoming events and NQE publications.

This paper summarizes the strategic framework HSRI has developed to achieve needed system improvements; and ten common issues or concerns that states have encountered throughout the process to develop individual or level-based budget allocation models, and examples of how states have addressed each issue.

Initiated following the Gulf Coast Hurricane disasters in 2005, the self assessment tool is designed to assist state developmental disabilities officials evaluate the extent to which their existing preparedness plans address the unique characteristics and needs of people with intellectual and developmental disabilities during periods of emergency or disaster.