Caregivers

This issue brief presents early findings from the most recent KFF 50-state survey of Medicaid HCBS programs, focusing on state policies adopted in response to the pandemic, the pandemic’s impact on Medicaid HCBS enrollees and providers, and states’ early plans for the new American Rescue Plan Act (ARPA) 10 percentage point temporary increase in federal Medicaid matching funds for HCBS.

On August 10, 2021, the U.S. Senate introduced the Nursing Home Improvement and Accountability Act of 2021. The bill aims to increase transparency, accountability and oversight as well as improve staffing in nursing homes.

Researchers at Emory University Goizueta Alzheimer's Disease Research Center are seeking participants for a study on LGBTQ caregivers. The project is intended to help develop a caregiver training program that addresses the obstacles these caregivers face in caring for people with Dementia. The center is seeking individuals who identify as lesbian, gay, bisexual or transgender, are 18 or older, and consider themselves a primary caregiver to complete a 60 minute questionnaire.

CMS Office of Minority Health is recognizing National Immunization Awareness month by providing immunization and vaccine resources on their website. The site houses shareable information about available, low cost vaccines, Medicare coverage for vaccines, COVID-19 resources, and more.

The EngAGED National Resource Center has released this data brief summarizing a survey of organizations within the aging network to see what social engagement programs were offered during the COVID-19 pandemic to older adults, people with disabilities, and caregivers.

NASHP has published an Appendix K interactive map, supported by The John A. Hartford Foundation, to track each state’s new flexibilities in modified 1915 (c) and 1115 waivers. States are using these waivers and amendments to ensure that their older adults and family caregivers are receiveing the LTSS services they need during the pandemic.

Funded by ACL, this resource library collects digital materials from the Older Adults' Equity Collaborative member organizations to provide tools and guidance to the aging services network, providers, older adults and family caregivers. The resources included cover topics of social isolation and mental health, Alzheimer's and Dementia, disabilities, caregiving, retirement income and security, and emergency planning.

The New York Academy of Medicine, with support from ACL, has created the Older Adults Equity Collaborative Resource Library to help advance equity in aging services. This digital library collects resources for diverse populations of older adults, their caregivers, and aging service providers. It also provides technical assistance and training to the aging services network to better serve a diverse population of older adults.

On June 24, 2021, the Better Care Better Jobs Act, S. 2210, was introduced in the United States Senate and referred to the U.S. Senate Committee on Finance. The bill would expand access to home and community-based services (HCBS) by providing $100 M for states to expand access to Medicaid HCBS and strengthen the HCBS workforce, and provide states a 10% increase in the Medicaid Federal Medical Assistance Percentage (FMAP) for HCBS.

CHCS published a Medicaid Policy cheat sheet detailing the importance of family caregivers. The resource reviews legislation and efforts led by the Biden Administration to support unpaid family caregivers, and answers the following questions: Who are family caregivers and what do they do? What hardships do family caregivers face as a result of providing care? How can legislation help family caregivers?