Caregivers

GAO recently published a report to examine how other countries provide support to family caregivers, challenges present in these approaches, and the development of HHS’ national family caregiving strategy. GAO researched caregiver policies from Australia, Germany, and the United Kingdom, which focused on employment flexibility, income support, and pension credits for family caregivers.

The Rosalynn Carter Institute for Caregiving (RCI) recently released a report with the results of a survey of caregivers nationwide. RCI surveyed caregivers through its partner network and 422 provided responses in the summer of 2020. The study sought to explore the direct experience of caregiver stress since the beginning of the COVID-19 pandemic. The survey includes data on financial stressors, medical stressors, isolation, and other factors affecting caregiver stress in the pandemic.

The GAO released a report on the impacts of the 2013 regulation that revised the domestic service employment and companionship services under the Fair Labor Standards Act (FLSA). This rule, which became effective in 2015, had the effect of extending minimum wage and overtime protections to a broader range of home care workers, many of whom provide Medicaid-funded home and community based services (HCBS).

In support of technical assistance to Idaho, the NCAPPS team prepared a Person-Centered Planning Facilitation Report which explores the experience of states that have specifically included plan facilitators in their HCBS waivers – including the circumstance under which the states deploy plan facilitators, the rates paid to facilitators, and the training requirements.

The purpose of this Guide is to assist State, Tribal, and Territory human service systems to fully and effectively including people who receive services in system planning and improvement efforts. It is relevant for all systems that support older adults and people with disabilities. This guide was originally developed as part of technical assistance activities through the National Center on Advancing Person-Centered Practices and Systems (NCAPPS)

Asset Mapping is the process of mapping stakeholders and how they are engaged by an agency and/or its allies. NCAPPS partners at Collective Insight, LLC, created a comprehensive Asset Mapping Toolkit to help organization looking to better understand and deepen their connections with the communities they serve.

ACL released a report of data collected by the National Adult Maltreatment Reporting System. This report details the finding from the fourth year (2019) of data collected by NAMRS. NAMRS is the only comprehensive national initiative compiling data on the abuse, neglect, and exploitation of older adults and adults with disabilities as reported to adult protective services. Data collected by NAMRS include quantitative and qualitative responses on many areas within adult protective services.

Altarum recently published a special report highlighting the impact COVID-19 restrictions has had on nursing home residents. The report is the result of a survey that directly polled residents about their pandemic experience in 365 nursing homes in 36 states.

The Center for Health Care Strategies published a brief highlighting six states – Alabama, Idaho, Iowa, New Hampshire, South Carolina, and Virginia – who have participated in innovative work to boost the support network for family caregivers. The brief includes lesson learned from each of the states’ programs and policies that support family caregivers. Additionally, the brief describes four elements that are essential to making effective changes to family caregiver support programs.

AARP has released its fourth iteration of the Long-term Services and Supports Scorecard. This scorecard ranks states and DC in order from 1 to 51 on a wide range of issues pertaining to older adults and people with disabilities. The LTSS scorecard has five domains that states are ranked within, and each of those domains has multiple indicators that are used to derive the overall score.