Long-Term Care

This report discusses what is known about effective programs to support family caregivers and emphasizes evidence-based programs for family caregivers of persons living with dementia. Evidence-based programs to help caregiving families are not widely available in communities. This report looks at barriers to scaling up effective programs and draws attention to programs that have been shown to improve one or more aspects of the quality of life of family caregivers.

In 2017, ADvancing States administered a survey of state agencies that deliver LTSS, including aging and disability agencies as well as Medicaid programs, regarding the significant policy, fiscal, and operational issues occurring within each state. During the survey, we collected detailed information about the structure of agencies, the supports provided, and the populations served by state programs.

A national survey of Area Agencies on Aging is conducted every two to three years. The National Association of Area Agencies on Aging (n4a) has released their 2017 survey report. They surveyed 622 Area Agencies on Aging (AAAs), with 412 completing the survey, to discover what services they commonly offer, how AAAs address funding, and what their policy priorities are.

This report provides a multidimensional look at state performance for the delivery of long-term services and supports (LTSS), based on a uniform set of performance measures and how performance has changed over time. It also includes the role that housing and transportation play in assisting older adults, people with physical disabilities and their family caregivers, as well as promising practices and emerging innovations to foster greater information exchange.

This report proposes jobs for caregivers that would help alleviate two national concerns for caregivers: the need for quality employment and the need to still act as caregivers. It discusses ways to promote the well-being of older adults, individuals with disabilities, children, and their families by laying the framework for opportunities to improve the quality and increase the quality of caregiving employment to create jobs that meet family caregiving needs.

The report highlights the commitment of participating states toward measuring and improving the quality of their long-term services and supports (LTSS) systems that serve seniors and adults with physical disabilities.

This report examines Minnesota's home care workforce and highlights trends in the broader sector. The report offers recommendations, including interventions that "elevate the role of the aide," and calls for better wages, higher reimbursement rates in state funding, and improved training, as well as approaches tailored to rural areas, such as new technologies in home care and transportation-related supports.

The National Coalition on Mental Health & Aging (NCMHA) has released a report on integrating older adult behavioral health into long-term care rebalancing. The report includes opportunities and recommendations for for funders such as public health agencies and managed care organizations (MCOs). The report notes that close to 50 percent of persons receiving long-term care have a mental disorder other than dementia.

This product is a PDF and PowerPoint slide presentation of US maps for selected characteristics of residential care communities and their residents. Characteristics include community ownership and chain status, disease-specific programming, practices, and revenue sources; and resident functioning, health conditions, and adverse events.

ADvancing States released a document summarizing the major components of the ACA that impact the provision of long-term services and supports (LTSS) to older adults and people with disabilities. These provisions may not be impacted by a repeal of the ACA, but some proposals include restriction or elimination of programs that provide these services and supports.