Report: LTSS Need, Receipt, and Unmet Need in the Washington State Population Age 18-64 with Disabilities

Beginning in 2020, LTQA conducted a pilot study testing a new model for data collection and analysis for this population in Washington State, in partnership with the Washington State Aging and Long-Term Services Administration (ALTSA) and the Community Living Policy Center (CLPC) at Brandeis University. This pilot study implemented one of the recommended strategies from our white paper – to partner with an interested state government to develop and test an approach that would combine new survey data with data from existing state administrative records. We added supplemental questions on LTSS need and use to Washington State’s 2021 Behavioral Risk Factor Surveillance System (BRFSS) survey, and combined this survey data with a novel state-developed model to predict LTSS need and linked Medicare and Medicaid claims data for state residents.

This final report provides a detailed account of the pilot project, including its methodologies and data analysis, shedding light on the LTSS needs and service utilization patterns of this diverse group.