Parental Caregivers' Desires for Lifetime Assistance Planning for Their Children with Intellectual and Developmental Disabilities - Journal Abstract

Future life planning is a growing concern among families with children with disabilities. This article presents a needs assessment evaluating feasibility of a new model for future life planning for family caregivers, Lifetime Assistance, which will provide ongoing planning and monitoring for individuals with intellectual and developmental disabilities. Findings show that caregivers overwhelmingly identified the need for the program and many were willing to pay for it themselves.