Workbooks

The Consumer Planning and Implementation Group (CPIG) was formed as a way to include consumers in the Real Choice Systems Change grant activities. CPIG represents consumers across disability, age, ethnicity, geographic locations, and include community advocates/providers. CPIG provides input on grant activities and provides recommendations to the Collaborative Team (consumers and representatives for Massachusetts’ Real Choice and Independence Plus grants).

As part of its CPASS grant, Alaska developed a curriculum for personal care assistant training. This curriculum goes through the various responsibilities that a home health worker would encounter. The curriculum is a total of 40 hours, followed up by written exams. These are the appendices to go along with Alaska's Personal Care Assistance 40 Hour Training Curriculum

This document is from the Aging and Disability Policy Summit. It notes the priority areas regarding aging and disability policy. They are: housing, transportation, health care, employment, education, and community participation. This worksheet provides a valuable framework for defining issues, activities and goals needed to enact change.

These guidelines were written to ensure that people with disabilities receive the support and assistance they need to fully contribute to NASDDDS sponsored activities, however the issues, challenges, and solutions offered are universally applicable to the involvement of all self advocates. This document provides a framework for involving recipients of state-funded developmental disabilities services in meetings and activities in an effort to obtain their valuable expertise perspective.

Federated Human Service Co-op exists to assist in the creation of Human Service Cooperatives (HSC) and to support those efforts in the most effective, efficient manner possible. They have developed two new resources to aid with the development of co-op groups. The Board of Directors Training Manual is designed for self-directed board of directors leading their own human service organization. The Policy and Procedures handbook is a template that can be modified to be program specific.

Recognizing the importance of measuring progress toward rebalancing, CMS contracted with Thomson Medstat to develop a model profile of one state and a companion technical assistance guide that other states can readily use to replicate and adapt the profile. Review Pennsylvania’s profile based upon their long-term support system across all disability and age groups. The technical assistance guide illustrates what a profile can provide and discusses the methods for development.

Certainly, stigma is one of the more formidable obstacles to a transformed mental health system. This resource kit is intended to raise awareness of mental health and help counter the stigma and discrimination faced by people with mental illnesses. Users are invited to use the kit with event planning, partnership development, outreach to schools and businesses, mental health resources, marketing to the general public, and grassroots outreach.

The Parent to Parent of New York State– Family to Family Healthcare Information and Education Center developed a number of fact sheets in Spanish to assist the parents they serve. Fact Sheet titles include: HCBS Waiver Programs, Navigating Doctors Appointments, Searching the Internet for Medical Information, Medication Tips, Record Keeping Suggestions, Relieving Stress. They have also developed a 34 page Care Notebook where families can keep a complete record of a child’s medical history.

The new consumer-directed Medicaid program in Montana, Big Sky Bonanza (BSB) program has created the following products provided to new enrollees. The Waiver Orientation manual contains a program overview, roles and responsibilities and training process. My Support Services Plan is an 18 page worksheet to help consumers develop goal statements, capture personal, health, and spending plan, create an emergency back-up plan and list medical information.

This brochure was created using feedback from consumer focus groups, peer trainers, and other stakeholders. The brochure provides safety & prevention strategies, planning for backup care, preparing for attendant support during a community-wide disaster, how to minimize risk of theft, and health care emergency instructions and form. The strategies address emergency backup and incident management for consumers directing their own care or who have an authorized representative directing their care.