Reports

Millions of Americans with disabilities or long-term illnesses need assistance with daily activities. Family members and friends fill much of that need, but paid workers are a critical source of care and services. The need for assistance is increasing yet the number of people available is growing slowly. CMS funded this paper to summarize literature and research on the home care, home health, and personal assistance services workforce, highlighting issues raised and lessons learned.

The Formative Evaluation of the Real Choice Systems Change Grants evaluates how the Systems Change grantees are progressing towards meeting their goals. The Formative Evaluation identifies problems faced by the grantees and ways that they deal with the problems. This document provides summary information about each of the FY2003 Grantees.

This report provides a summary of the partnership development activities undertaken by the 52 Grantees that were awarded a Systems Change Grant in 2001. It describes the ways that Grantees involved consumers and public and private partners in the development of Grant applications and their plans for involving them in implementation activities. In addition, the report includes a more in-depth description of partnership involvement for nine Grantees (three from each Grant type).

The purpose of this report is to compare and contrast the fiscal year (FY) 2001 Systems Change Grantees’ goals and planned activities as identified in their Grant applications submitted to CMS. This report provides a summary of the goals of the 52 FY 2001 Grantees and representative examples of the various activities they plan to implement to help them achieve these goals. The report also includes a summary of States’ views of the strengths, challenges and barriers of their LTC systems.

Of the Real Choice Systems Change grantees awarded funding under CMS’s Fiscal Year (FY) 2001 solicitation, 20 have one or more initiatives to improve the recruitment and retention of direct service workers. This report focuses on the workforce initiatives of these 20 Grantees, with an in-depth look at 7 Grantees (AR [2 grants], KY, MT, NH, NC, VT, with whom RTI conducted site visits).

This memorandum and the accompanying tables present data on Medicaid 1915(c) Home and Community-Based Services (HCBS) waiver expenditures from Federal Fiscal Years 1998 through 2003.

Outlines the challenges facing service providers in addressing the needs of Latino caregivers. This monograph uses case studies to illustrate how specific cultural characteristics, such as language, customs and religion, can impact caregiving situations, and offers suggestions on ways cultural competency can be improved at organizational and policy levels. This publication is supported by a grant from the Archstone Foundation.

Traces the development of the oftentimes confusing array of programs and services in the U.S. health and long-term care system, and describes how service providers can help families pull the pieces together. The monograph examines the challenges facing caregivers and offers a list of useful resources available to providers and caregivers. Part of a series of reports from Family Careigver Alliance. This publication is supported by a grant from the Archstone Foundation.

How would a system of supports look if people with disabilities and their circle of friends, or network, were truly in charge of their own needs, if they truly achieved self-determination? This paper is a call to action and an illustration of the depth of change required if we are truly to become responsive to people with disabilities.

The Vermont Work Incentives Initiative is comprised of several interconnected grant projects that fund direct services to clients, research, and systems change efforts focused on improving employment outcomes and independence for people with disabilities. The web site prvides a wide array of resources on several topics, including benefits counseling, medicaid buy-in program, personal assistance services and other employment supports. A link to the Reports page is provided.