Data

To what extent have several key state agencies and bureaus embedded concepts such as partnerships with families and citizens with disabilities, consumer decision making and self-determination into the training of their staff? This report is a follow up companion to a previous study and provides a good window onto 'grass roots' perspectives of consumers and families receiving services while informing agencies about how their particular efforts compare to those undertaken by others.

This website is from a research project administered by the University of Colorado. The site houses a list of publications, offers state profiles data and a complete list of helpful links. Visit the website to review the charts and tables for each state or to order a publications such as the new State of the States in Developmental Disabilities: 2005.

The Ohio Department of Mental Retardation and Developmental Disabilities has been implementing an internet-based centralized reporting system to report and track major and unusual incidents. The following MUI Reports for 2004 include data such as total incidents and total MUI by category and county. The web-based reporting and tracking system have been very successful in improving timeliness and monitoring quality.

Committed to creating opportunities for youth with disabilities to achieve successful futures, NCSET coordinates resources, offers technical assistance, and disseminates information. Their website offers events, publications, data, essential tools and resources to increase the capacity of organizations involved with the transition of youth with disabilities.

This new interactive online tool provides the latest key data for each state’s Medicaid program and the population it serves, allowing for easy comparisons of one state to any other state or to the nation as a whole, on a selection of important indicators. Utilizing figures from the Kaiser Commission on Medicaid and the Uninsured and drawn directly from statehealthfacts.org, this tool provides customized figures and tables that can be easily printed as fact sheets, emailed or saved.

The 50-state annual survey of budget conditions and Medicaid cost containment actions in FY2005-06 shows that all states implemented and planned more Medicaid cost-containment actions, but are also implementing expansions as the gap between Medicaid spending growth and state tax revenue narrowed.

This newly released biennial study verifies that low-income people with disabilities are experiencing a national housing affordability crisis. The Priced Out in 2004 study compares the monthly SSI income of more than 4 million Americans with disabilities to the fair market rental rates for efficiencies and modest one-bedroom apartments in every housing market in the country. Review more facts, figures and examples about housing and the national rent increases which greatly exceed SSI Benefits.

Most long-term care provided to older persons living in the community is provided by family and friends. Among family caregivers, adult children are most likely to assume the role of primary caregiver. This <i>Profile</i> provides data about adult children who are primary caregivers to an older parent that needs assistance performing one or more basic everyday activities.

This is the fifth national survey of the direct-care workforce published by the National Clearinghouse on the Direct Care Workforce. It examines public policy actions taken by states to strengthen the direct-care workforce, and updates information collected in prior surveys. Responses were received from 38 states, representing a 76 percent return rate. The report contains data tables with survey results and details national initiatives pertaining to the direct care workforce.

Although consumer direction is a growing trend in publicly supported HCBS programs across the states, we know relatively little about how this approach is implemented in the states. This national study aims to describe the role of consumer direction in publicly funded family caregiver support services and HCBS programs with a family caregiving component. This report addresses three questions with the intent of informing policy discussions.