Consumer/Participant Direction

The first of these two presentations is for volunteer partners who help persons with disabilities and their families integrate employment transition into individual education plans (IEP). It is broad in scope, touching on the rights of the individual and family, employment and training resources, and state supports available. The second training focuses on the policy level and describes the goals, participants, outcomes, and keys to success of a statewide youth transition program.

This analysis examines how U.S. federal laws may be affected if the U.N. Convention on the Rights of Persons with Disabilities (CRPD) is ratified by the country. The authors summarize each CRPD article along with with U.S. laws that either guarantee the same rights or contradict the convention. The authors conclude that better implementation of existing laws or congressional action would bring federal law in line with CRPD.

Best practices in HCBS workforce development, Federal and state workforce initiatives, and research findings are highlighted in these slides and handouts. Presentations and workshops touched on wages and benefits, recruitment, credentials, peer support, policy, and more. The agenda, program, and evaluation results are also available. The symposium was hosted by the National Direct Service Workforce Resource Center May 8-9, 2008 in Baltimore, MD with support from HHS and the Dept. of Labor.

This policy paper proposes that the unionization of direct care workers can improve recruitment, retention, and service quality without limiting consumers’ rights and choices. The author explores the historical roots of efforts to address direct support workforce issues, reviews the role of unions in the field in the past, examines emerging support models, and comments on current union efforts.

This article explores the benefits and challenges people who have disabilities experience when managing their personal care programs. It also examines how LIFE Accounts would complement social participation opportunities for persons with disabilities.

This report compares strategies of eight states engaged in strengthening consumer participation in long-term care (LTC) policy advocacy. The authors identify several tips for states to encourage consumer advocacy with the goals of increasing the efficacy and accountability of programs. This paper is part of a project funded by CMS to study ways to create a more equitable balance between Medicaid funds for LTC going to institutional services versus community-based supports.

This study published in The Gerontologist indicates a mixed portrait of experience and outcomes between service models and worker groups. On most dimensions of stress and satisfaction, consumer-directed workers report outcomes equal to or more positive than agency workers. The study is comprised of a random sample of 618 telephone interviews with workers in the In-Home Supportive Services program in California.

This book and corresponding materials present a strategy for improving the health care workforce serving older adults via expanded education and training, models of care, and public/private programs. The committee proposes a three-prong approach: 1)Enhance the geriatric competence of the entire workforce; 2)Increase the recruitment and retention of geriatric specialists and caregivers; 3)Improve the way care is delivered. The book is available free online or for sale in PDF or hard copy format.

This report outlines an integrated strategy to update the country’s long-term care services infrastructure in preparation for the aging of the population over the next thirty years. Recommendations are focused on the areas of quality, workforce, technology, and financing.

Over the last eight years, federal, state, and local governments have re-envisioned how to deliver and pay for an ever-growing caseload of elderly individuals and persons with disabilities who need services at home, in the workplace, or in more costly nursing facilities. This discussion provides a vision and a context for HCBS reform consistent with CMS’ vision for reforming post-acute care that focuses on addressing system barriers and informing and empowering health care consumers.