research

Through support from the Patient-Centered Outcomes Research Institute, CHCS has published a Patient-Centered Complex Care Research Agenda to help involve people with lived experiences with complex care in the research process. The Better Care Playbook spoke to two individuals who helped develop the Research Agenda to learn how involving people with lived experience in research can help strengthen the complex care evidence base.

With support from the Patient-Centered Outcomes Research Institute, CHCS brought together patients, providers, researchers, and clinicians to develop a Patient-Centered Complex Care Research Agenda. The agenda aims to embed a consistent focus on what matters most to patients into complex care research design and will be released in Fall 2022. This blog post shares lessons for including patient perspectives to guide research priorities, based on CHCS’ experience creating a patient and family advisory board and a research community to help inform the Research Agenda.