Complex Care

Through support from the Patient-Centered Outcomes Research Institute, CHCS has published a Patient-Centered Complex Care Research Agenda to help involve people with lived experiences with complex care in the research process. The Better Care Playbook spoke to two individuals who helped develop the Research Agenda to learn how involving people with lived experience in research can help strengthen the complex care evidence base.

With support from the Patient-Centered Outcomes Research Institute, CHCS brought together patients, providers, researchers, and clinicians to develop a Patient-Centered Complex Care Research Agenda. The agenda aims to embed a consistent focus on what matters most to patients into complex care research design and will be released in Fall 2022. This blog post shares lessons for including patient perspectives to guide research priorities, based on CHCS’ experience creating a patient and family advisory board and a research community to help inform the Research Agenda.

This brief outlines lessons from the Center for Health Care Strategies’ MassHealth Care Planning Learning Collaborative, where Massachusetts Accountable Care Organizations and Community Partners integrated care planning across their organizations to improve care for Medicaid members with complex needs. This brief can inform providers, payers, and community partners in other states seeking to improve care for people with complex health and social needs.

This new communications resource, developed by CHCS and the Camden Coalition of Healthcare Providers’ National Center for Complex Health and Social Needs, identifies clear and consistent language that can help strengthen the complex care community. The language represented in the guide reflects perspectives of stakeholders and people with lived experiences, and is intended to support providers, program leaders, consumer advocates and communications professionals in developing complex care approaches.