New York

Need an overview of the basic components of the nation’s largest health coverage program? Medicaid covers 55 million low-income individuals and is the dominant source of long-term care financing. Examine the structure of the program, who it covers, what services it provides, and spending. Because Medicaid is jointly financed by the federal and state governments programs vary across states. Tables examining the state-to-state variation in eligibility, enrollment, and spending are included.

This paper explores and analyzes selected state approaches to engage nursing facility operators to be part of systems change activities that offer individuals additional, less restrictive choices to live more independently with appropriate supports. The strategies described offer other states lessons learned that may be replicated as part of a broader approach to meet changing and growing demand for home and community-based services. Efforts in IN, IA, MI, MN, NE, ND, NY, and WI are described.

The Compendium contains basic information about each of the Real Choice Systems Change Grant awards in FY03–FY04 plus the Family to Family and Systems Transformation Grantees awarded in FY05 and FY06. The Compendium will help Grantees identify others with similar goals and activities. Learn more about how the grants will be used to allow more people of all ages with a disability or long term illness to live and participate in their communities. The sixth edition replaces all previous editions.

A new database showcases the efforts of many of the TA providers serving CMS’ grantees. The database allows users to see the wide range of activities that support and enrich the grantees under the New Freedom Initiative. The database contains important information regarding existing and upcoming research products, conferences, and significant meetings as well as a wide variety of toolkits, surveys, and policy briefs, intended to be of interested to the disability and long-term care community.

When accessing health care for children there is another level of advocacy and information needed. Learning to advocate, learning to research and learning how to communicate with multiple systems are all skills to be acquired. Many times families are asked to “Put your request in writing”; for the parents of children with disabilities, there are even more reasons. The New York F2F grantee developed this booklet with hints, suggestions or models for families to use when writing letters.

Special Needs Plans (SNPs), authorized by the Medicare Modernization Act, offer state Medicaid programs a new potential vehicle for coordinating Medicare and Medicaid benefits for dual eligibles. This report investigates the degree to which states (and plans) are using this option to develop more fully integrated Medicare-Medicaid models for dual eligibles needing long-term care services.

The Parent to Parent of New York State– Family to Family Healthcare Information and Education Center developed a number of fact sheets in Spanish to assist the parents they serve. Fact Sheet titles include: HCBS Waiver Programs, Navigating Doctors Appointments, Searching the Internet for Medical Information, Medication Tips, Record Keeping Suggestions, Relieving Stress. They have also developed a 34 page Care Notebook where families can keep a complete record of a child’s medical history.

A public voice for caregivers, the Family Caregiver Alliance (FCA) offers information education, services, research and advocacy programs to support and sustain the vital work of families caring for loved ones. The website offers fact sheets, audio archives, referrals, newsletters, issue briefs and reports. A newly updated resource map called Caregiving Across the States allows state administrators, policy makers, and caregivers to access state-by-state data from an interactive database.

The annual 50-state survey of Medicaid officials finds an improved economy combined with the implementation of the new Medicare prescription drug benefit has contributed to the lowest rate of Medicaid spending growth in a decade and the fourth consecutive year in which Medicaid spending growth has slowed. Review the news release, read the report, or listen to conference materials and view the presentation slides.

This site offers a unique mix of quantitative and qualitative policy information to assist advocates, researchers, and policymakers interested in improving implementation of federal workforce policies. Data is presented in state by state summaries and interactive databases for Workforce Investment Act (WIA), Temporary Assistance for Needy Families (TANF), Pell Grants, Perkins Vocational & Technical Education, Adult Education & Family Literacy, and Wagner-Peyser/Employment Service programs.