Grantee produced

The goal of the New Hampshire Resource Center project is to integrate the current information and assistance (ServiceLink) program with the state assessment and counseling program. This ADRC pilot program has shared their functional staffing model and job descriptions. In addition to being a visual illustration of staff resources, the documents also provide basic purpose, accountabilities and requirements for the Center Manager, Long Term Support Counselor, and Referral Specialist.

Family Voices of North Dakota has developed two handbooks. The intent of the booklets is to help families with resource questions and offer a way to record the information they gather. New Beginnings is a guide of referrals and contacts. Care Notebook is an organizing tool for keeping track of important information about a child’s health care. Although this material is specific to North Dakota, other Family to Family grantees may find the guides useful when replicating resources.

Access to affordable, accessible, and integrated housing within a community of choice has been identified as one of the primary barriers faced by persons with disabilities in West Virginia. Lack of housing has become a major barrier to successfully moving individuals from institutions to the community. This manual is intended to be a resource to assist individuals with understanding the complicated maze of systems that must be navigated to successfully own or rent a home or apartment.

The goal of the West Virginia Real Choice project is to create enduring improvements in community long-term support systems so that individuals of any age who have a disability or long-term illness have the choice and necessary supports to live and participate in their communities. The have created three position papers to present arguments for expanding the horizons of employment options, personal assistance programs, and waiting lists protocols.

The WV Real Choice program is providing incentive funding to parent/family based organizations. The funds will be awarded to organizations such as Parent Educator Resource Centers, WV Parent Training and Information, Family Resource Networks and other family-based organizations to implement best practices in middle and secondary education regarding youth transition that use a person-centered approach. This RFP is an great example for other states structuring similar requests.

New York’s Family to Family Real Choice Grantee, Parent to Parent has compiled a group of publications to assist families with children with special health care needs in understanding the complex system naviagate. Titles include: Understanding Health Insurance, Prescription Tips From Parents, Financial Aid, Researching Health Care Information on the Internet, Selecting a Doctor, Section 504 Fact Sheet, Understanding Medicaid and Tips For Handling Medical Appointments.

This video was produced & directed by the Connecticut C-PASS grantee, UCONN Center on Disabilities, with assistance from consumers & PCAs participating in various HCBS waiver programs. Included are perspectives from individuals & family members representing various disabilities & ages, explaining why personal assistants are important parts of their daily lives, & why being a personal assistant can be a challenging and rewarding career. The recruitment tool will be available in various formats.

The state of Florida has offered a number of examples and samples of their Memorandum of Understanding (MOU) and a Memorandum of Agreement (MOA) between various state agencies. The roles and responsibilities of each party are set forth so that each party understands their functions in implementing the ADRC.

This report summarizes the results of the Massachusetts qualitative consumer satisfaction surveys with both ADRC consumers and surveys of the Consumer Board and Community Partners Advisory Board. The report contains the survey tool, methodology, findings and recommendations to improve satisfaction among these key stakeholder groups as part of the ADRC project’s continuous quality improvement approach.

Are citizens with disabilities able to participate in all desired aspects of community life in the town in which they live? The Real Choice System Change Community Inclusion Assessment was launched “to determine the level and quality of inclusion in Connecticut communities.” Consumers with disabilities and their families were recruited to answer this survey both on-line and via telephone.