Developmental/Intellectual Disabilities

The WV Real Choice program is providing incentive funding to parent/family based organizations. The funds will be awarded to organizations such as Parent Educator Resource Centers, WV Parent Training and Information, Family Resource Networks and other family-based organizations to implement best practices in middle and secondary education regarding youth transition that use a person-centered approach. This RFP is an great example for other states structuring similar requests.

This video was produced & directed by the Connecticut C-PASS grantee, UCONN Center on Disabilities, with assistance from consumers & PCAs participating in various HCBS waiver programs. Included are perspectives from individuals & family members representing various disabilities & ages, explaining why personal assistants are important parts of their daily lives, & why being a personal assistant can be a challenging and rewarding career. The recruitment tool will be available in various formats.

This newly released biennial study verifies that low-income people with disabilities are experiencing a national housing affordability crisis. The Priced Out in 2004 study compares the monthly SSI income of more than 4 million Americans with disabilities to the fair market rental rates for efficiencies and modest one-bedroom apartments in every housing market in the country. Review more facts, figures and examples about housing and the national rent increases which greatly exceed SSI Benefits.

This study describes the experiences of workers hired under consumer direction. The Cash and Counseling model does not appear to cause adverse consequences for the hired workers. Directly hired workers report high levels of job satisfaction and do not suffer physical or emotional hardship beyond what might be expected for individuals providing care to relatives. This report offers other information implications about consumers, their families and workers’ well-being.

This web site will help individuals who receive Medicaid and Medicare benefits, known as dual eligibles, their families and caregivers, and advocates for people with disabilities understand the new Medicare prescription drug coverage, called Part D. Part of the Medicaid Reference Desk, this web-tool also offers a timeline of key dates, a glossary of terms, information for making coverage decisions and tools for plan comparisons.

The state of Florida has offered a number of examples and samples of their Memorandum of Understanding (MOU) and a Memorandum of Agreement (MOA) between various state agencies. The roles and responsibilities of each party are set forth so that each party understands their functions in implementing the ADRC.

Health literacy can be defined as “the degree to which people can obtain, process, and understand basic health information and services they need to make appropriate health decisions. Awareness that people with low health literacy skills face difficulties accessing and navigating the health care system has prompted greater emphasis on making communications clear and easy-to-read. This issue brief offers recommendations and resources particularly for resource centers.

What are the responsibilities of 2005 ADRC grantees? The Grantee Requirements and Cooperative Agreement between grantees, AoA and CMS offers full details. All projects must submit a work plan that highlights key goals and objectives for the project. This resource offers guidance to grantees as they develop a plan.

This report summarizes the results of the Massachusetts qualitative consumer satisfaction surveys with both ADRC consumers and surveys of the Consumer Board and Community Partners Advisory Board. The report contains the survey tool, methodology, findings and recommendations to improve satisfaction among these key stakeholder groups as part of the ADRC project’s continuous quality improvement approach.

The Quality Choices for Maine project was conducted from 2001-2004. This report focuses on Access to Services, one part of the three-year RCSC Quality Grant. The specific housing related goal was “to improve access to community housing for people with disabilities of all types.” Project activities were overseen by the Access to Services Technical Assistance Group and a variety of stakeholders. Read the activity summaries, lessons learned and recommendations on how to sustain the work.