Caregivers

The latest report from the AARP Public Policy Institute, "Valuing the Invaluable," examines current patterns in family caregiving, delves into the intricacies of family caregiving, and suggests measures that should be taken to tackle the financial, social, and emotional obstacles that arise when providing care for loved ones, including parents and spouses. The report offers a comprehensive analysis of recent advancements and prospective state and federal policies aimed at assisting family caregivers who play a crucial role in long term services and supports.

The Center for Health Care Strategies has released a summary of its top 10 resources from 2022 that outline opportunities to strengthen the U.S health care system, particularly for Medicaid beneficiaries.

The Commonwealth Fund has published a compilation of state successes in transforming long-term care as a resource to support policymakers. This policy guide is the result of a nine-month partnership between CSG and the Commonwealth Fund. Subject matter experts and stakeholders from Arizona, Georgia, Hawaii, Indiana, Minnesota, New York, Pennsylvania and Virginia examine the following focus areas in long-term care: Addressing State Regulation of Long-Term Services and Supports Facilities; Optimizing American Rescue Plan Act Spending on Home- and Community-Based Services Under Medicaid; and Revitalizing the Direct Care Workforce and Supporting Family Caregivers.

Since the early ninties the Eldercare Locator has connected older adults, caregivers, families, and professionals to local services that support healthy aging at home. This new infographic illustrates the top needs of individuals who contacted the Eldercare Locator in 2021. Requests were mostly related to transportation (22%), in-home services (12%) and housing (11%).

This new KFF brief finds that only 45% of all nursing facility residents and 22% of staff are up to date with their COVID-19 vaccinations. That is a sharp drop from the 87 percent of nursing facility residents and staff who completed their primary vaccination series. The U.S. Centers for Disease Control and Prevention (CDC) currently defines having up to date vaccines as “having received a bivalent booster or having received a final shot of the original vaccines less than two months ago.” The share of residents who are up to date ranged from 73 percent in South Dakota to 24 percent in Arizona. Among nursing home staff, the share ranged from 48 percent in California to 10 percent in Alabama.

This new KFF brief finds that only 45% of all nursing facility residents and 22% of staff are up to date with their COVID-19 vaccinations. That is a sharp drop from the 87 percent of nursing facility residents and staff who completed their primary vaccination series. The U.S. Centers for Disease Control and Prevention (CDC) currently defines having up to date vaccines as “having received a bivalent booster or having received a final shot of the original vaccines less than two months ago.” The share of residents who are up to date ranged from 73 percent in South Dakota to 24 percent in Arizona. Among nursing home staff, the share ranged from 48 percent in California to 10 percent in Alabama.

The Profile of Older Americans is an annual summary of the statistics from the U.S. Census Bureau, the National Center for Health Statistics, and the Bureau of Labor Statistics related to older adults in the United States. The Profile illustrates the shifting demographics of Americans age 65 and older and includes information on population growth, marital status, living arrangements, income, employment, and health. This year's report includes a special section on family caregivers.

The Maximizing Independence (MIND) at Home program at Johns Hopkins University provides home and community-based care coordination for individuals and families living with dementia. Through focus groups with Black caregivers, researchers at Johns Hopkins aimed to better understand the unique needs of Black patients and families living with dementia, identify opportunities to improve care delivery, and understand caregivers’ perception of the MIND at Home program. This blog post from The Playbook explains the MIND at Home program and how dementia care coordination programs can better support Black patients and their families.

Findings from the University of Michigan National Poll on Healthy Aging demonstrate the importance of providing support to caregivers. More than half of people age 50 to 80 say they helped at least one person over 65 with their health or personal care needs, meals, finances, or home maintenance/improvement in the past two years, according to new findings. While nearly all helpers (96%) reported positive aspects of supporting others, a quarter said it was more difficult than they expected, especially for those helping with more care tasks or helping someone with mild cognitive impairment or Alzheimer’s disease/other dementia.

CHCS has two new tools designed to help support health care stakeholders in fostering trust between patients and providers: 1) Words Matter: Strategies to Reduce Bias in Electronic Health Records. This tool offers practical strategies for providers on how to write notes that promote patient-centered care and dignity. 2) Building Patient-Provider Trust to Help Patients Navigate a Biased System. This tool can help providers better understand the impact of their bias and better serve patients of color. It includes a handout that can be shared with patients and families to help them effectively engage with their providers.