Long-Term Care

This paper reports the outcome of focus groups, interviews and written surveys conducted in 2003 by a consultant working for the Northern Area Agency on Aging in Wisconsin under a contract with the Department of Health and Family Services. Groups of elders, family members and long-term care professionals were asked to address the question of how, when and why older people make the decisions they do about long-term care.

People Talking to People Building Quality and Making Change Happen accomplishes not just a system change, but also a paradigm shift. Their goal is to create a system of quality assurance and quality improvement that has consumers providing feedback. The feedback gathered during the three year period allows for system wide quality improvement by giving consumers and their family members a voice, thus able to control important choices and decisions in their own lives.

To help States build the infrastructure needed to remove barriers and create more consumer responsive LTC systems, CMS awarded $70 million in Real Choice Systems Change Grants. Fifty-two Grants were awarded in Sept. 2001 (25 Real Choice, 10 Community-Integrated Personal Assistance Services & Supports, 17 Nursing Facility Transition). This report describes the progress FY01 Grantees have made on their activities during the first year of the three-year Grant period (Oct 1, 2001-Sept 30, 2002.)

As part of its quality management program, Wisconsin revised its Individual Service Plan (ISP) form that was required as part of the Medicaid waiver process. The new revised forms address individual outcomes. Attached forms include the ISP Instructions, Medicaid form, and Individual Outcomes.

This report provides a comprehensive framework for Wisconsin’s Functional Screen Quality Assurance. Wisconsin’s Functional Screen system (a web-based application that collects information about an individual’s functional status, health and need for assistance for various programs) is comprised of three separate screens: Adult Long Term Care Functional Screen (LTC FS), Children’s Long Term Support Functional Screen (CLTS FS), and Mental Health/AODA Functional Screen (MH/AODA FS).

This Request for Proposals (RFP) concerned the development of methods and training for assessing personal-experience outcomes for adults with developmental or physical disabilities and frail elders. The grant awardee would contract to develop a tool and related tasks to assess person-experience outcomes and quality of life for the above listed populations.

The “Quality Close to Home” papers are part of Wisconsin’s process to review the existing quality management system for Home and Community Based Services. The report on local practices was the result of a series of interviews conducted with local informants who conduct quality management activities. The second paper outlines the scope of quality management, challenges of quality management, federal rules and regulations, and provides a design for an improved quality management system.

The UCare website is a feature of the Utah Department of Human services and exists primarily to help caregivers and provide link to other resources. Resources are for the elderly, people with mental illness, for people with disabilities and their caregivers. Information is available on-line and through a statewide toll free number. Other features to note include provider report cards, guides, a glossary and the long-term care planning tool.

These three presentations provide information about the Utah Real Choice marketing and awareness efforts. The “UCare” program was established as part of the grant and the surveys were conducted in 2004, 2005 and 2006. Using telephone surveys, survey participants were asked about their awareness and understanding of the UCare program before and after the marketing campaign.

The Utah Real Choice grant produced “The Caregiver Guide” and they have shared several modules. Topics covered include: Community Supports to Stay at Home, Caring for a family member with mental illness, Hiring and managing personal assistants, Assistive technology, Creating an accessible home, and Caring for a child with special needs. Modules are also available in Spanish.