Long-Term Care

ADAPT is a group of self-advocates working for civil rights for people with disabilities. Follow the link to see their arguments and evidence in support the Community Choice Act. The Act would establish a national program of community-based attendant services and supports, regardless of a person’s age or disability, and allow them to choose where they receive services. Materials include talking points, summaries, links to the bills, and updates on status and actions related to the Act.

Medicaid currently fills in the gaps in Medicare’s benefit package for 8.8 million enrollees with limited income and resources (dual eligibles). Shifting aspects of this financing to the Federal government could save states money and create opportunities for better care management and coordination. Data tables show how much each state could save if certain financing roles were shifted.

Massachusetts assesses the service providers it licenses and certifies based on quality of life areas (such as the degree to which consumer choice and control is supported) and organizational outcomes. The reports can be used to understand quality of services and to inform consumers of the array of options available. Agencies are listed alphabetically by region and each report’s executive summary describes services offered.

Are we on the brink of a revival of interest in managed long-term care for people with intellectual and developmental disabilities? Four states’ experiences in experimenting with managed care are examined here, along with stakeholders’ views on these efforts. The report looks at goals, methodologies, and similarities and differences between programs. It concludes by looking at implications for other states.

New York has 12 long-term care (LTC) programs: two residential and ten community-based. Data from all are compiled here with the goal of informing policymaking and addressing challenges to the state’s Medicaid LTC programs. An overview of current programs and a snapshot of data such as enrollment and spending are also presented. The first chapter takes a look at the whole system and four other chapters offer data on the largest programs in terms of people served and dollars spent.

PHI developed this competency-based curriculum to help participants develop core skills needed for quality work across care settings. It provides an orientation to direct-care work and introduces needed knowledge, attitudes, and skills. It also provides training in tasks related to activities of daily living. The appendices outline the course and learning outcomes and define additional skills needed to become certified nurse assistants or home health aides.

Planning documents show how Connecticut will use a Cash & Counseling model to provide flexible service choices to keep people out of institutions. The narrative gives details such as the state’s current rebalancing status, goals and objectives, approach, challenges, service options, training and eligibility. The work plan details “Choices at Home” key tasks, lead person and time frame associated with each major objective.

Through this interactive training, family caregivers can learn about available resources and train themselves on how to deal with common challenges. Some of the resources featured are links to agencies and senior centers, care locator tools, and descriptions of helpful programs. Trainings cover how to recognize and prevent stress, improve communications with family members and service providers, and address conflicts.

The assessment helps workers determine the level of care and appropriate placement for people needing long-term services. Diagnoses, nursing care needed, level of functioning in daily activities, and mental status and impairments are taken into account. Instructions come after the tool and begin on page 5.

The conference took place in May 2009 in North Carolina and focused on the global advancement of the principles of self-determination. Presenters spoke on topics including Medicaid reform, self-directed budgeting, self-employment; quality, education, advocacy; and youth, among others. Included here are slides from talks as well as essays by the organizer on the purpose of public funding for services and challenges facing Medicaid.