Family Caregivers

This editorial, by the Center for Health Care Strategies (CHCS) and The John A. Hartford Foundation explores how employers and states can support employees with caregiving responsibilities through flexible workplace policies, tools, and resources. The editorial highlights resources from two states participating in CHCS’ Helping States Support Families Caring for an Aging America initiative.

CHCS published a Medicaid Policy cheat sheet detailing the importance of family caregivers. The resource reviews legislation and efforts led by the Biden Administration to support unpaid family caregivers, and answers the following questions: Who are family caregivers and what do they do? What hardships do family caregivers face as a result of providing care? How can legislation help family caregivers?

This report, by the University of Massachusetts at Boston and Community Catalyst, shares information collected from family caregiver listening sessions. The sessions were intended to give family caregivers the opportunity to communicate their challenges, needs, and suggest recommendations for services, supports and policies. Findings from the sessions cover topics including emotional and financial stress, caregiving education and training, workplace flexibility, and tax policy change.

GAO recently published a report to examine how other countries provide support to family caregivers, challenges present in these approaches, and the development of HHS’ national family caregiving strategy. GAO researched caregiver policies from Australia, Germany, and the United Kingdom, which focused on employment flexibility, income support, and pension credits for family caregivers.

The Center for Health Care Strategies published a brief highlighting six states – Alabama, Idaho, Iowa, New Hampshire, South Carolina, and Virginia – who have participated in innovative work to boost the support network for family caregivers. The brief includes lesson learned from each of the states’ programs and policies that support family caregivers. Additionally, the brief describes four elements that are essential to making effective changes to family caregiver support programs.

AARP has released its fourth iteration of the Long-term Services and Supports Scorecard. This scorecard ranks states and DC in order from 1 to 51 on a wide range of issues pertaining to older adults and people with disabilities. The LTSS scorecard has five domains that states are ranked within, and each of those domains has multiple indicators that are used to derive the overall score.

The National Alliance for Caregiving and AARP released an update version of the Caregiving in the US report for 2020. The report contains updated data from research conducted since the report’s last release in 2015. Included in the report are data about caregiver prevalence and demographics, care recipient demographics, types of care caregivers provide, caregiver training and information needs, and other results from the research.

This AARP Public Policy Institute research report examines support for family caregivers in managed long-term services and supports. The report finds that states have made progress in this area, but have opportunity to continue improving support for family caregivers in their MLTSS programs. One potential solution suggested by the report is to ensure that MLTSS contracts between states and health plans include clearly defined requirements to identify and support family caregivers.

The latest report in the AARP Public Policy Institute’s Valuing the Invaluable series estimates the economic value of unpaid family caregiving at $470 billion in 2017. The report also explores family caregiving trends, highlights federal and state policy changes since the release of the previous Valuing the Invaluable report in 2015, and offers further policy recommendations to enhance the well-being of caregiving families.

This fact sheet was developed as part of the Center’s Helping States Support Families Caring for an Aging America initiative. Six states – Alabama, Idaho, Iowa, New Hampshire, South Carolina, and Virginia- are involved with the initiative. This fact sheet provides an overview of unpaid family caregiving and lists options state leaders can consider implementing in order to support family caregivers in their state.