Caregiving

USAging invites Aging Network providers and partners who are responsible for the administration of caregiver services and supports to register to join the National Caregiver Champion Collaborative (CCC). With a purpose of facilitating and supporting peer networking and engagement for those leading caregiving services and supports, participants will gather regularly in an affinity group model to share successful strategies and best practices, discuss lessons learned, explore new partnerships, and get insight into the latest research and emerging evidence-based programs. Champions will be encouraged to develop on-going state, regional, or local caregiver efforts focused on enhancing and innovating caregiver services and supports...

The Employer Assistance and Resource Network on Disability Inclusion (EARN) has recently published a new webpage dedicated to exploring the advantages of workplace flexibility. Additionally, EARN has released three corresponding issue briefs focusing on caregiving, transportation, and equity in relation to workplace flexibility. Since the onset of the COVID-19 pandemic, workplace flexibility has become increasingly prevalent, with organizations offering employees the option to choose how, when, and where they work, all in pursuit of cultivating more inclusive, accessible, and equitable workplace environments. This new resource is designed to assist employers in understanding the benefits of a flexible workplace, the different...

The RAISE Family Cargiving Advisory Council has released its RAISE Act Report to Congress on September 22, 2021. The report includes 26 key recommendations to help develop a national strategy to support family caregivers, including ways that public and private sectors can support the community's changing needs as the nation adapts to COVID-19.

Researchers at Emory University Goizueta Alzheimer's Disease Research Center are seeking participants for a study on LGBTQ caregivers. The project is intended to help develop a caregiver training program that addresses the obstacles these caregivers face in caring for people with Dementia. The center is seeking individuals who identify as lesbian, gay, bisexual or transgender, are 18 or older, and consider themselves a primary caregiver to complete a 60 minute questionnaire.

This report captures State Grantee accomplishments, highlighting the knowledge, commitment, ingenuity, and skillful stewardship and administration of resources. Through their work, state Lifespan Respite grantees provide evidence of the merit of the Lifespan Respite Care Program, and inform our path forward.

This report analyzes the challenges grandparents and older relatives face as primary caregivers. The report outlines the numbers of grandparent and older relative caregivers, and the reasons for this care. It also examines how HHS supports state efforts to use federal programs and initiatives to assist these caregivers. GAO concludes the report by making recommendations for how HHS could improve the sharing of information and best practices about older caregivers with states.

The latest report in the AARP Public Policy Institute’s Valuing the Invaluable series estimates the economic value of unpaid family caregiving at $470 billion in 2017. The report also explores family caregiving trends, highlights federal and state policy changes since the release of the previous Valuing the Invaluable report in 2015, and offers further policy recommendations to enhance the well-being of caregiving families.

This data profile uses data from the Caregiver Outcome Evaluation Study of the National Family Caregiver Support Program (NFCSP). It highlights the differences in demographics and the dynamics between short and long term caregivers.

ACL undertook a two-part evaluation of the Older Americans Act Title III-E National Family Caregiver Support Program (NFCSP) between 2013 and 2018. ACL conducted a small, retrospective study of caregivers in the Outcome Evaluation whose care recipient passed away during the course of the outcome evaluation. This supplementary study gathered information on the service components and needs of bereaved caregivers and highlights “advice from caregivers to caregivers.”

This report discusses what is known about effective programs to support family caregivers and emphasizes evidence-based programs for family caregivers of persons living with dementia. Evidence-based programs to help caregiving families are not widely available in communities. This report looks at barriers to scaling up effective programs and draws attention to programs that have been shown to improve one or more aspects of the quality of life of family caregivers.