I/DD

The Center for Transition to Adult Health Care for Youth with Disabilities, a national resource center funded by ACL’s Administration on Disabilities (AoD), recently launched a new website to help young people with intellectual and developmental disabilities (I/DD) direct their own transition to the adult health care system. Developed for and by youth with I/DD, the site has a variety of both person-centered and culturally competent tools and resources to help support youth, their families, and health care professionals through this transition. The new website includes resources that are designed to give youth more choice and control throughout their health care transition...

This brief highlights the efforts of states who implemented Value Based Payment initiatives within systems that support individuals with intellectual or developmental disabilities (I/DD). The brief emphasizes the importance of understanding the population and provides an overview of the population served and their length of engagement with the service system. It looks at the experiences of OH and WA in the Medicaid Innovation Accelerator Partnership program from April 2018 to September 2019.

This report explores the need for resources and funding to train professionals on how to better support people who have I/DD and a mental health need. Over the past year, The Arc has conducted focus groups on this subject with 66 stakeholders in Maryland, Indiana, and Florida. The findings from these discussions are highlighted in this report.

This brief focuses on the needs of individuals with intellectual and developmental disabilities who are also experiencing mental illness. The Arc explored the unique challenges faced by these individuals through focus groups and national panels. This brief summarizes the findings from these activities and includes recommendations for the development of new training, systems change activities, research, and greater public awareness around I/DD and mental health issues.

This report is the result of a symposium held with approximately 25 thought leaders in the healthcare and LTSS industry. It also includes data analysis of 28 service agencies supporting 3,000 people with IDD. This report is intended to serve as a road map for key measures which would support people with IDD.

This chapter is part of MACPAC's June 2018 Report to Congress on Medicaid and CHIP. It reports on the trend of states using managed long-term services and supports (MLTSS). The chapter discusses program outcomes, the added complexity of long-term services and supports in Medicaid managed care, and different directions being explored in MLTSS. It also identifies issues for further examination.

This brief discusses the introduction of Employment First policies in seven states and explores each state’s values, mission, and goals around increasing employment opportunities for people with disabilities. It is a useful tool both for states wishing to bolster their Employment First efforts and for those looking to begin developing Employment First policies.

This report is the second in a series of publications from the MLTSS Institute. There are unique challenges in implementing a managed long-term services and supports (MLTSS) program for people with intellectual and developmental disabilities (I/DD). The report provides context on the intersection of program design and participant advocacy and outlines successful strategies for both states and health plans. It also highlights promising practices from MLTSS programs delivering I/DD services.

This White Paper explains a proposed quality framework for managed care programs serving individuals with intellectual and/or developmental disabilities (ID/DD). The framework, developed by UnitedHealthcare's National Advisory Board, extends beyond traditional clinical measures to benchmark the quality of the "services and supports" delivered in these programs to measure how these programs address individuals' quality of life.