Long Term Services and Supports

There are wide variations in the incidence of disability among different groups of the population. A higher rate of disability means an increased likelihood of needing long-term services and supports. “Reducing disability among disadvantaged groups would result in more equal health outcomes and substantial savings in long-term care costs,” according to this report. Read this analysis on the trends of disability among different population groups.

To provide a look at the various provisions of the new health reform law on LTC, a distinguished panel of experts addressed questions such as: What are the provisions of the law pertaining to LTC? How will consumers, providers and states be affected? What are the major components of the CLASS Act, and what are some of the challenges for states and the federal government in implementation? Access the presentations, transcript, event summary, podcast and more.

While caregivers of veterans face similar situations as family caregivers in general, they also have unique challenges. The study reveals how providing care affects these caregivers’ lives, what organizations and information sources have been helpful to them, and what programs and services would support and assist them. Attached are links to the Full Report, Executive Summary in English and Spanish, Press Release, and a Key Findings Fact Sheet.

Growth in the cost of long-term care services in the U.S. has slowed somewhat during the past two years. As home health care gains in popularity, however, costs are beginning to rise more rapidly and are expected to increase steadily over the next few years. Read about these trends and more in this 2010 study that looked at consumer perceptions and cost trends by state and key metropolitan areas.

Family caregiving has long been the most common source of long-term care for older people with disabilities in the U.S. Explore this report looking at recent trends in the types of assistance that older people with disabilities receive and sources of payment for this assistance. It presents major findings on the growing number of older people with disabilities in the community and their care arrangements, summarized by seven trends.

How does the state of New Hampshire reach out to individuals with disabilities and their families? The Office of Consumer & Family Affairs (OCFA) provides information, education and support for children and youth, families, adults and older adults who are dealing with the challenges of mental illness. Attached is a newsletter put out by OCFA that provides important updates and resources as well as a link to their website.

Every year numerous children with severe disabilities who get in-home care through state Medicaid funds age out of the program. Some go to nursing homes, other families struggle to keep their children at home but often get overwhelmed by the care. Read this story about an Illinois family’s struggle, and other families who are suing states for continuation of home care. Links to interactive databases, e.g., milestones in LTC policies with other related information are included in the article.

A conference was held to inform potential solutions to improve the cost and quality of care across the health care continuum for older Americans. Synthesizing the conference, this report addresses many of the challenges facing individuals with chronic conditions and functional impairments, and identifies new opportunities for the integration of medical services and social supports tailored to older Americans and supported by new payment designs.

The mission of this network is to promote and foster culture change "to improve the quality of life for older Georgians and those closest to them in all settings where aging services are delivered”. The Network was founded in 2008 and includes a clearinghouse for organizations and providers working on person-centered, long-term care in multiple care settings. Numerous resources can be found on their site, along with information on special projects, supporting organizations and more.

Market approaches must become flexible with broader access to alternate providers and services such as HCBS. In the past, HCBS networks have been expensive to build and at times unwieldy to manage without sufficient dedicated resources. This presentation, which was delivered as the keynote for the September 2010 Medicaid Management Care Congress in Washington, DC., reviews the critical challenges to overcome for success in using HCBS as a strategy to extend care access.