Long Term Services and Supports

This is a technical report about the supports and services that people with IDD receive through the State IDD agency. In addition to the report, there are state profiles, which describe status and trends for each state in the country, and a chart gallery, which is an interactive tool to view detailed data by state, year, and funding authority. Topics include ICF/IID and Medicaid Waiver recipients, expenditures and expenditures per person from 1977 to 2015.

The AAHD Health Promotion Resource Center for People with Disabilities is intended to provide visitors with current and valuable information about multiple aspects of health promotion and wellness for people with disabilities.

This paper provides direct insights from managed care leaders about family caregiver supports and provides examples of how progressive managed care plans are supporting family caregivers who are caring for plan members with LTSS needs. The paper discusses how it is important to understand and address family caregivers’ roles and their needs in order to have a high-performing LTSS system, because the family provides the lion’s share of LTSS to people who need help.

This issue brief from the Kaiser Family Foundation discusses four key issues related to long-term services and supports (LTSS), including institutional and home and community-based services (HCBS) quality, highlighting major legislative and policy changes over the last 30 years. The brief also includes data about LTSS providers and consumers, summarizes key federal laws and policies related to quality, and lists selected federal quality measures.

This report from Truven Health Analytics is a detailed example of how TEFT grantees obtained and maintained stakeholder involvement throughout the lifecycle of stakeholder engagement.

This report from Truven Health Analytics describes section 1915(c) home and community based services waiver programs. Over 1.6 million people received section 1915(c) waiver services in 2014; this is a 5 percent increase from 1.5 million in 2013. Furthermore, the number of section 1915(c) waiver participants has increased by an average of 4 percent per year since 2009. Participants received services for an average of 10 months in 2014, as in previous years.

This report provides information about Medicaid LTSS beneficiaries in 2013. The report estimates that approximately 5.2 million people received Medicaid-funded long-term services and supports (LTSS) during calendar year 2013. This data includes state-reported estimates for managed LTSS programs. 72 percent of LTSS beneficiaries received home and community-based services (HCBS), including people who received institutional services during the year.

The Genworth Cost of Care Survey is a tool that details the costs of different types of care in various locations. This is a tool that can assist with long term care planning, and help individuals and families plan for long term care expenses. The 2017 survey covered 440 regions across the United States.

This paper describes strategies used in four highly ranked or significantly improved states, including Minnesota, to reduce the risk of long-term nursing home care after a hospitalization. Included in the paper is a toolkit of resources that can help others learn more and potentially replicate these practices, as well as contact information for experts.

The Disability Network Business Acumen Center holds a call or webinar on a monthly basis with partners concerning topics of interest to those who work in the field. Notes, PowerPoint presentations, and an audio recording from each call can be found here.