Consumer/Participant Direction

Ohio Coordinating Center for ACT published this white paper, subtitled Using Peer Support to Enhance ACT Teams. The publication offers definations, implementation suggestions and list of barriers. The guide was edited by consumers, providers and other stakeholders and disseminated at the 2007 CMS national conference.

This collection of materials comprises a short course for consumers to further peer support among individuals, to gain skills for use as Peer Support Specialists, to advance the use of warm lines and partnering activities, and to form and sustain peer support groups. The expectation is that people giving and taking this course will have heightened awareness of effective communication skills and resources to assist them as they provide peer support.

This consumer guide from MetLife is one in a series of guides called "Since You Care" done in cooperation with the National Alliance for Caregiving. It provides information for family caregivers about locating potential home care aides, screening applications, conducting interviews, running background checks and administering payroll, including social security and other taxes. It also provides helpful resources, including books, publications, websites and a sample contract.

This report describes the activities of 12 Grantees that received Independence Plus (IP) grants in FY 2003 and are using them to increase self-directed services options for persons of all ages with disabilities or chronic illnesses. Grantees encountered a range of issues while implementing. This report provides information for states and stakeholders planning, implementing, or expanding self-direction programs, whether through solely state-funded programs or the Medicaid program.

A study was conducted on consumer-directed personal assistance services (PAS) cooperatives, with an emphasis on workplace PAS. This report presents case studies of seven cooperatives, describes advantages of consumer-run cooperatives, identifies funding issues and sources, and presents considerations for those contemplating starting. It contains a review of the literature which reveals only a few examples of successful consumer-directed PAS cooperatives in the US, however, they show promise.

This guide offers a quick reference on housing resources that can be used to create integrated, affordable, and accessible housing and basic information on how to use these resources. Including community strategies that increase the amount of integrated, affordable, and accessible housing units that usually fall into three general categories: development of housing units; access to existing housing units; and asset development.

The national percentage of Medicaid spending on home and community-based services (HCBS) has more than doubled from 1992 to 2004. This report presents a summary of the main trends to emerge for the three Medicaid HCBS programs and the results of a survey of policies such as eligibility criteria and waiting lists.

This final report summarizes the findings from five years of research on how each of the three demonstration states implemented its program, and on how the programs have affected the consumers who participated, the consumers’ paid and unpaid caregivers, and the costs to Medicaid. The analysis is based on an experimental design to ensure that the estimates of program effects are unbiased, and has sample sizes that are adequate to detect program effects of policy-relevant magnitudes.

This report provides information about family caregivers of older Americans and the state-level programs serving them. The profiles provide information on state demographics and programs related to caregiving. They offer a snapshot of each state's caregiver support programs, services offered, funding sources, eligibility criteria, and options for consumer direction. Also, information about locating grandparent support programs is included along with highlights of recent state legislation.

The purpose of this survey analysis is to provide states with an overview of the implementation of these DRA changes across the country, specifically in terms of Long-Term Care services and the steps the states have taken. Findings address eligibility, Children with Disabilities, Money Follows the Person, HCBS State Plan Amendments, Transition from Institutions, Managed Care, SPA for Personal Care Services, Cash & Counseling, Care Coordination, Disease Management and Long-Term Care Reform.