Consumer/Participant Direction

At the beginning of 2013, 16 states had Medicaid managed long-term services and supports (MLTSS) plans, with mandatory or voluntary enrollment. Target populations varied by state. In 13 states, MLTSS plan members were afforded the choice to participant-direct (PD) at least some HCBS services. Based on 5 in-depth state case studies expectations regarding availability and take-up of PD services in MLTSS varied as did methods of communicating expectations. PD varied from 1.2% in AZ to 24% in NM.

A February 2012 online survey consisting of 30 questions was sent to all states and focused on three topics: consumer-directed personal care services; assessments and care plan changes; and case management. The survey results provide information about respondent states’ practices regarding Medicaid funded LTSS. Consumer-directed care was found to be provided majorly through waivers; most assessments contracted out; and case management paid for as a service rather than administrative cost.

Interested in the work and current challenges that face The National Association of State Units on Aging members? This report, resulting from a February through April 2009 NASUA survey, was given to its members to obtain a snapshot of their work and the current challenges they face. The results, divided into 10 themes, provide that snapshot as well as the states’ perspective on the evolution of the aging network as it works to redesign the long-term care delivery system.

Held in May 2005 this national conference was designed to meet the unique training needs of waiver program operators. This year’s conference, titled "The Sun Shines Brighter at Home," offered substantive opportunities to learn about the national initiatives, policy directions and grant programs that shape the current environment. The attached agenda has links to all of the presentation overheads.

This research issue brief summarizes the results of an in-depth research study on participant engagement in the design and improvement of Cash & Counseling programs. It is intended to provide policymakers, program funders, advocates, and program participants with insights into the challenges faced and subsequent outcomes when developing and sustaining meaningful participant engagement practices. This issue brief aims to provide concrete recommendations based on the research conducted.