New Jersey

This report describes grant activities in three major LTC systems areas: Access to Long-Term Care Services and Supports, Services, Supports, and Housing, Administrative and Monitoring Infrastructure. For each of the focus areas the report describes Grantees’ accomplishments, illustrates the challenges and discusses the consumers’ role in the implementation and evaluation of activities. The report uses information provided during the reporting period October 1, 2004 to September 30, 2005.

This report assesses the appeal of the Cash and Counseling demonstration by: (1) estimating the proportions of eligible beneficiaries that participated and comparing the characteristics of participants and nonparticipants; (2) describing beneficiaries’ most common reasons for agreeing or declining to participate; and (3) examining whether the demonstration affected the number of beneficiaries accessing personal care services or home and community-based services over time.

Assessing the well-being of workers hired under consumer direction and addressing their concerns is critical, because the model is sustainable only if workers are satisfied. While care recipients who manage their own care appear to be much more satisfied than others, the primary reason given for dropping out is difficulty finding or keeping a worker. Moreover, tapping consumers’ family members and friends as additional sources of labor could help solve the serious worker shortage.

Family to Family Centers provide information and other supports both to family members and to professionals who serve children and youth with special health care needs. This topic paper highlights innovative strategies developed by individual Family to Family Centers to develop partnerships to expand their reach, to enhance outreach to parents, to serve a culturally diverse clientele, to help youth prepare for transition, and to ensure organizational sustainability.

The New Jersey Association of Centers for Independent Living website provides resources that can help users transition successfully. Centers for Independent Living (CILs) are consumer-driven organizations, owned and operated by individuals with disabilities. New Jersey has a network of 12 CILs that provide the core services of Information and Referral, Peer Support, Independent Living Skills Training, and Advocacy. Visit the web site for useful tools, handbooks, links and many other resources.

A new monthly report from HUD is available on-line and is broken down state-by-state and downloadable in an MS Excel spreadsheet. Participating Jurisdiction (PJs) can use the reports to view open activities in IDIS including activities with 100% of the funds drawn and with a status code of FD, or final draw. PJs can view activities that have been open (OP) for several years with little or no HOME funds drawn. These projects, if not progressing, should be cancelled. The data is updated monthly.

This memorandum and tables present data on Medicaid 1915(c) Home and Community-Based Services (HCBS) waiver expenditures from Federal Fiscal Years 2000 through 2005. Each individual HCBS waiver is classified by population served in order to show the distribution of HCBS waiver expenditures across long term care populations.

This memorandum presents data on Medicaid long-term care expenditures in Federal Fiscal Year 2005 (Sept 2004-Sept 2005). The accompanying tables present data on Medicaid Expenditures for Long-Term Care services from 1993-2005. Data included for Nursing Homes, ICF-MR, Personal Care, HCBS Waivers, Home Health, Home Care, Inpatient Hospital Care, Inpatient DSH, Inpatient Mental Health, Mental Health DSH, Medicaid Managed-Care, Prescribed Drugs, Long-term Care, Targeted Case Management and PACE.

This report describes the implementation of Personal Preference by synthesizing information from in-person discussions with program staff, a mail survey of program consultants, telephone interviews with consumers in the treatment group, and program records. It discusses the program’s goals and features, the ways consumers managed their program responsibilities and took advantage of increased flexibility, and the degree to which consumers were satisfied with the programs.

This report draws on interviews with Medicaid care planners for insight into the issues that arise in establishing programs to move individuals with significant long-term care needs from institutional to community settings. The five states that participated in this study—Florida, Louisiana, New Jersey, Ohio and Washington—each received federal grants for nursing home transition activities and had varied experiences.