Person Centered Planning

This Care Coordination Notebook helps families manage the care and growth of their child as they are involved with the many professionals who offer assistance and expertise. This notebook is designed to offer families basic information and a framework to help you gather information and coordinate care for children with special health care needs. The guide includes basic informational overviews, sample letters, and Take Action Forms.

On March 31, 2006, HHS Secretary Michael Leavitt outlined new flexibilities available to states under the Deficit Reduction Act (DRA) of 2005 (Pub.L. No. 109-171). Find out how the new DRA provisions may link with other options available under Medicaid to transform long-term care to person-centered care and to expand coverage for individuals with disabilities, increase access to community supports, and promote personal responsibility, independence, and choice.

Recommendations for a Research Agenda on Asset Development for People with Disabilities-Previous work indicates that people with disabilities have significantly fewer assets than people without disabilities. Research suggests that individuals in lower income tiers are able to save and that holding assets has a positive relationship with personal well being, economic security and community involvement. This paper recommends four significant areas in developing a research agenda.

This monograph discusses program design considerations to assist as states move toward greater individuality and flexibility in the provision of services and supports. The paper outlines topics to consider when expanding opportunities for participants to choose and direct individual who provide assistance, including the risks/benefits arrangements, provider qualifications, training, person-centered planning, the case manager role, and safeguards to prevent abuse, neglect and exploitation.

This AARP Public Policy Institute Issue Paper examines the efforts of South Carolina, Washington and Wisconsin to improve home care quality by using a more person-centered approach. The initiatives described in this report point to the significant ongoing efforts that states are using to ensure quality care and support in the home. The challenge for state officials continues to be the creation of quality assurance systems that place consumer needs and goals for quality of life first.

Visit this clearinghouse, training and technical assistance center devoted to moving power and authority over resources directly to individuals with disabilities, families and allies. The website features publications, events, learning opportunities, resources and products including a new guidebook, Guaranteeing the Promise of Freedom. Designed for trainings, this guide addresses individual budget development, ways to re-thinking public dollars, an approach to quality and a budget template.

This report provides summary information on the performance of Maine’s home and community based care system. The data can be used to identify areas where the system is working and people are satisfied and also points to areas where further analysis would be helpful. The quality indicators are for the following programs: Older Adults and Adults with Disabilities, Adults with Physical Disabilities - Who Self Direct and Adults with Mental Retardation/Autism.

What is the vision of “quality” in community support for people with developmental disabilities? Quality is a concept of many dimensions. This website is your invitation to join the quality community in its journey to fulfill the vision of a positive future for all people with developmental disabilities. The site offers webinars, resources, publications, tools and links.

The goal of the West Virginia Real Choice project is to create enduring improvements in community long-term support systems so that individuals of any age who have a disability or long-term illness have the choice and necessary supports to live and participate in their communities. The have created three position papers to present arguments for expanding the horizons of employment options, personal assistance programs, and waiting lists protocols.

State policy makers and consumer advocates are advancing programs and policies to support community living for all individuals. Operationalizing principles of “self direction,” “consumer direction,” or “participant direction” entails many details. This State Policy in Practice technical assistance document offers concrete information and specific state examples on ways to implement participant-directed planning and individualized budgeting.