Developmental/Intellectual Disabilities

The National Beneficiary Survey (NBS) supplements the Social Security Administration's (SSA's) records by providing extensive additional data on Social Security Disability Insurance (SSDI) beneficiaries’ and Supplemental Security Income (SSI) recipients’ employment efforts. This publication released in March 2018 presents statistical information about beneficiaries and their employment experiences as gathered in the 2015 survey.

CMS recently released a 2017 update to its 2012 MLTSS inventory, compiled by Truven Health Analytics. This study reviewed available information about the status of Medicaid MLTSS programs, and provides updates on the prevalence of MLTSS programs, total enrollment, and specific program design elements as of August 2017. The report surveys the landscape of MLTSS programs across the country, provides detailed summaries of each MLTSS program, and identifies national trends.

These resources are intended to be used for education and outreach to raise awareness about the availability of Medicare benefits for low-income beneficiaries, namely the Medicare Savings Programs (MSPs) and the Medicare Part D Low-Income Subsidy (LIS/Extra Help) program. These outreach materials include posters to educate Medicare beneficiaries with disabilities about the low-income subsidies.

MACPAC’s 2018 Report to Congress on Medicaid and CHIP addresses managed care, telehealth, and disproportionate share hospital (DSH) payment. The report presents recommendations and analyses backed up by analyses of administrative data and reviews of federal and state policies in each of these areas.

Presentation from the 2017 HCBS Conference on "Priority Measures of Quality in LTSS: NCI™ & NCI-AD™".

Includes archives of prior webinars on HCBS Quality efforts.

Demonstrating value through the quality of your AAA or CBO services can be an effective way to build and expand new business relationships. This presentation, part of n4a’s 2017 annual conference, focuses on the types of measures you can easily report on, and also how you can provide upstream benefits by impacting the measures that health plans must report on and be evaluated by.

This report describes the current state of the direct support professionals (DSP) workforce as a crisis. DSPs promote participation in the U.S. economy, and yet the average DSP wage is $10.72, most work two or three jobs, and the average annual DSP turnover rate is 45%. This report explores how these issues affect individuals, families, and human services systems; the factors that contribute to these issues; and promising practices to strengthen the direct support workforce.

The Institute on Disability has released the latest Annual Disability Statistics Compendium and Report. The Compendium includes many tables of data, including state and national values and trends over time. The Annual Report highlights state and trend data, and complements the detailed tables available in the Compendium & Supplement. The Annual Report includes maps to highlight the variability in disability rates by state, and each map is related to a specific table from the Compendium.

The following is a list of agencies that are reviewed by New York's OPWDD's Division of Quality Improvement (DQI). In the reports section, each agency will have a listing of the services it provides. However, performance information will only be available for those agencies that provide Medicaid Service Coordination services, and/or agencies whose certified programs have had a Safety and Physical Plant Review completed since October 2014.