Caregivers

In 2001, the State of New Jersey was awarded an Administration on Aging grant as part of the National Family Caregiver Support Program (NFCSP). New Jersey’s project involved integrating a focus on caregiving into the existing long-term care system. The project included activities aimed to better identify caregivers and their unique needs and increase awareness among senior service staff of diverse caregiving situations.

This technical assistance document is the first in a series of papers that examines issues pertaining to respite services as part of the Medicaid program. By reviewing the prevalent definitions of respite in the published literature and federal documents, we seek a consistent view of respite services that can be used in the development of administrative policies to support respite for Medicaid HCBS beneficiaries and their informal caregivers.

This report focuses attention on a growing issue facing the nation: how to support & sustain those who are the cornerstone of our LTC system—the dedicated families & informal caregivers. This national study is the first to examine publicly funded caregiver support programs throughout all 50 states. The report identifies key findings, describes state approaches to providing caregiver support services, offers state-by-state profiles, pinpoints challenges, & expands recognition of caregiver needs.