Caregiver Support

This infographic contains information on caregivers including demographic data, caregiver responsibilities, pressures on caregivers, and discussion of the limited supports for caregivers.

Access to culturally appropriate respite care can support caregivers and allow people with dementia to continue aging in place. The International Association for Indigenous Aging has announced a new Indigenous respite care toolkit that aims to help build capacity for community-based respite care. The toolkit is a collaborative effort of Morning Star Lodge, an Indigenous community-based health research lab, File Hills Qu’Appelle Tribal Council and a community research advisory committee comprised of people from 11 First Nations communities.

The Better Care Playbook for People with Complex Needs has come out with a new collection about supporting family caregivers. Family caregivers provide care for individuals with complex health needs, including older adults, people living with dementia, and people with disabilities, and are often responsible for taking on medical tasks such as medication management, wound care, and assisting with mobility. This playbook explain what a supportive family caregiving model looks like and how organizations can implement these approaches in their work.

RRF Foundation for Aging has released an issue brief on investing in caregiving. More than 53 million people are family caregivers who provide essential support to older adults. Estimates suggest that the care they provide is worth nearly half a trillion dollars, making caregivers the nation’s largest healthcare workforce. This brief provides an overview of the key issues around caregiver support and describes the work the foundation is funding to address these issues.

This AARP Public Policy Institute research report examines support for family caregivers in managed long-term services and supports. The report finds that states have made progress in this area, but have opportunity to continue improving support for family caregivers in their MLTSS programs. One potential solution suggested by the report is to ensure that MLTSS contracts between states and health plans include clearly defined requirements to identify and support family caregivers.