Compendia

Review a comprehensive list of existing performance measures on long-term services and supports (LTSS) systems in the US. It can serve as a valuable pool of resources regarding LTSS performance standards available from federal and state initiatives, as well as valuable projects undergone in private sector and academia. The list also covers measurement tools targeting specific beneficiary groups and programs, including dual eligibles and adults with disabilities.

This compilation includes information about state 1915(c) Home and Community-Based Medicaid waivers, which provides the largest federal source of funding assistance for respite. New waiver tables have been added to this compendium for the following states: DC, Oregon, South Dakota, Utah, Washington, West Virginia, Wisconsin and Wyoming. Individual tables were also added to the Search Results pages for each of these states in the National Respite Locator under Respite Funding and Eligibility.

These documents prove useful to State Lifespan Respite Programs, which are mandated by federal funding, to work in collaboration with a state respite coalition. Each fact sheet contains the following information on each state respite coalition: Start-Up Process and Coalition History; Structure; Staff; Funding; Membership; Meetings and Communication; Major Activities; Available Documents (Bylaws, Strategic Plans, Surveys, Brochures, etc.); and State Contact Information.

Are you developing a participant handbook for your Veteran-Directed Home and Community Based Services program? Review state examples from Maine, Massachusetts, Texas, and Washington. These participant handbooks provide an overview of the VDHCBS program, the assessment process, developing a person-centered plan and individual budget, legal responsibilities as an employer, working with a Financial Management Services vendor, and more.

Drawing on techniques from both educational and workforce systems, this guide introduces a comprehensive systematic approach for supporting youth with learning disabilities. It reflects a “disability rights” perspective and discusses federal rights to assistive technology, considerations in effective disclosure of a disability, and information on accessing civil rights protections in various settings. Find in-depth information, including numerous charts, tables, and tools.

Health Affairs has published a special issue devoted entirely to long-term care. Review articles on providers, issues related to Medicare and Medicaid, transition and diversion programs, new state strategies to meet LTC needs, quality of care, demographic issues, policy and financing, health spending, caregivers and the workforce, and palliative care and end-of-life.

Recently enacted health care reform has a number of implications for PAS users. The Center for Personal Assistance Services has compiled a number of publications on this topic. The information is divided into the categories of: overall, long-term care, Medicaid, Other and Implications. A link to the full text of the Act is included as well as a summary and timeline of the Act

Find a listing of caregiver services drawn from numerous sources by DHHS’ New Freedom Initiative Subcommittee on Caregiving members, speakers and other stakeholders. The list is not intended to be exhaustive or all-inclusive. It includes several programs developed to support the caregiver such as Caring From A Distance and the National Caregiver Alliance.

Explore this toolkit, which identifies some of the best reform timelines, resources to help explain temporary high-risk pools, Medicaid and Medicare changes, reform’s impact on private coverage, provisions for small businesses, and the important state role in implementing reform. Included are an extensive listing of experts, contact information, and websites. The toolkit was based on a briefing for journalists, and a link to a webcast of this briefing is included.