Consumer/Participant Direction

This issue paper explores how consumers can be involved in monitoring community services for people with disabilities. It explores the challenges of finding real roles for people with disabilities as well as other barries, but concludes that goal is worthy of the struggles.

This Community Living Brief explores the transition to an independent, integrated living situation. This article serves as a guide to assist the individual when considering moving back into the community. The article provides information on finding an advocate and also provides a transition checklist to help facilitate the moving process.

This article evaluates the potential for using negotiated risk contracts in consumer-directed home and community based long-term care.

This is a companion paper to Balancing Safety and Freedom in Consumer-Directed Systems of Support, written to provide concrete strategies for the design and implementation of a process for evaluating and improving both the freedom and the safety of those receiving support. Recommendations are offered to address key issues that are present in consumer-directed systems of support.

This paper identifies and reviews key issues involved in states’ efforts to balance the need to ensure health and safety with the competing necessity to respect the right of the individual to freely determine the events of his or her life.

This report is focused on the status of Family Care implementation in WI. It contains background information on the Family Care program, as well as evaluative information on the development of each pilot project. The report also contains a glossary of terms and a research methodology section that demonstrates the contacts made by The Lewin Group in the five pilot counties—Fond du Lac, La Crosse, Milwaukee, Portage and Richland—in order to assess the current status of the Family Care program.

This report provides a thumbnail sketch of long-term care budgets, legislation and planning in the 50 states and the District of Columbia. The goal of the project is to obtain insights into recent state long-term care public policy reforms,as evidenced by their proposed or recently enacted legislation, task forces and budgets.

In these reports, the National Conference of State Legislatures (NCSL) traces the budget issues that states confronted in 2002 & 2003 and examines how they addressed those issues. The report also describes long-term care legislation enacted in 2002 & 2003 and long-term care planning work that is under way in many states.

Alaska changed its Medicaid personal care program based on principles and recommendations from a 75-person Personal Care Summit that involved program participants, personal assistance providers, advocates, and state policy makers. The changes created consumer-directed personal care agencies that train participants to direct their own services and perform fiscal responsibilities for people who employ their own personal assistants through the CDPCP.

These materials are from the national conference sponsored by the Centers for Medicare & Medicaid Services (CMS) and held in Nashville on May 2-3, 2002. The goal of the conference was to provide an opportunity for information exchange among decision-makers in the design and implementation of quality management/improvement. This conference was designed to facilitate communication around quality management among state staff, federal agency staff, providers, and consumers/advocates.